Getting help is still a struggle - Sweet's Syndrome UK

Sweet's Syndrome UK

488 members298 posts

Getting help is still a struggle

faith12 profile image
1 Reply

I have posted about my symptoms and bad consultations. After a year in a flair I am still in need of help. I was diagnosed by two biopsies initially. But I have been dismissed as a doctor said a blood test (by a private endo) which he glanced at , I think it was about the neutrophills, meant I did not have Sweet's. Is this correct? I feel very put down inspite of my symptoms. I know doctors think a blood test in thyroid disease is correct but they are wrong and symptoms should be looked at. I paid a private Endocrinologist for help and feel better now. I feel I am under attack with doctors and need to defend my actual symptoms. I have had to complain about the last telephone consultation and have asked for a knowledgeable doctor to be found for me. If I am not covered head to toe in awful lesions constantly doctors believe nothing I say.

Written by
faith12 profile image
faith12
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Shell567 profile image
Shell567AdministratorSweet's Syndrome UK

Hi Faith12, SS patients normally have a raised neutrophil count. Biopsy most commonly shows dense neutrophilic infiltrate (lots of neutrophils in the tissues). SS can develop secondary to certain thyroid conditions.

Not what you're looking for?

You may also like...

I need some help quickly. My husband is very sick and we thing organs might be involved. He says he feels like his body is shutting down.

He was diagnosed with sweets syndrome a few weeks ago. First occurrence was fall 2011. Happened...
carguyusa profile image

Health unlocked newbie

Hi all, i was diagnosed with Sweets syndrome about 4 years ago and that was after 3 years of not...
Jacqs23uk profile image

Newly Diagnosed and Struggling

Hi, my name is Valerie and I was just recently diagnosed with Sweets Syndrome. I was diagnosed...
ValerieHorn profile image

Does anyone suffering with the fatigue, light headed, aches and insomnia that goes with sweet syndrome?

I was diagnosed with sweet syndrome 2 months ago with skin liaison all over arms face neck and...
Durbajlo0405 profile image

An Introduction to Sweet's syndrome - links to information (pinned post)

Sweet’s syndrome is an autoinflammatory (not autoimmune) condition and form of neutrophilic...
Shell567 profile image
Administrator

Moderation team

Shell567 profile image
Shell567Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.