Having a flare-up sucks

[Danae_mae]

Hi I just thought I'd share this with people who might understand. I was diagnosed with Sweet's in 2012. I had a small scratch on my arm that wouldn't heal. It took a few days until it resembled the typical lesion that anyone who has Sweet's knows. After a day or two it was quite large and very painful. Like being burned with a cigar from the inside. I also developed more lesions. Worried that it might be flesh eating disease I went to the E.R When they examined me they didn't know what it was so they placed me on a 5 day course of the super antibiotics. Of course it didn't work and I just got worse. I felt so bad and was quite sick. Finally when I got to see the dermatologist she knew exactly what it was and gave me prednisone. It worked well for me and eventually it cleared up. Since then I've had 3 flare ups with the lesions. I have also had some other symptoms that my dr. Can't seem to diagnose me with. I feel frustrated because I'm so tired all the time.

[Shell567 Administrator Sweet's Syndrome UK]

Hi Danae_mae,

Sorry to hear you've been having such a rough time.

There's a full list of SS symptoms on our blog: helpforsweetssyndromeuk.wor...

Sometimes, another treatment is given alongside or instead of prednisone, particularly if the SS needs to be managed in the longer term: helpforsweetssyndromeuk.wor...

Unfortunately, if SS has developed secondary to another condition it can be more difficult to manage. This is because if the underlying condition flares-up, then the SS often does too.

Michelle.

[grannyjones]

same here the doctors treated me like I was a physco wasn't until the lesions appeared on my hands a trainee doctor sent me to a Dermo he knew straight away but confirmed it with a biopsy from the lesion, trouble is my GP's don't understand the symptom's of it all the nausea the fatigue my limbs and face sometimes feel like someone rubbed chilli on it I lose my appetite because I feel sick and will only eat small amounts. I have never felt so bad in my life I know what your going through its so frustrating

[Danae_mae in reply to grannyjones]

Thanks for your reply

I'm having a big flare up right now on my arms. I'm in pain, tired and feel terrible. I try to remain positive in front of my kids. I'm sure everyone knows that can be hard when you hurt and feel terrible. I don't feel like going back on prednisone since it causes such bad side effects itself. Therefore I haven't been back to my Dr. If I had a better Dr. I would go. It seems where I live good Dr.s are hard to find.