Hi all ,after suffering for a long time with back pain i am now told i have osteoporosis and it looks as if i have had it for quite a while.i am 62 and will have to go on medication ,i am worried that this will affect my scleroderma what with the stomach and all the other problems that come with limited scleroderma.these results were shown up on x rays and i now have to have a bone scan to form a base for future scans . I know i have to ask how the meds will affect me when i go for results for scan ,can any one help if they have the same problem . many thanks lyn

7 Replies

  • Yes, I have the same problem. My osteoporosis seems to have become stable

    and don't have medication for it anymore but I have to have vitamin D. You seam to be getting the normal investigations.

  • Yes thank you Zenabb, what meds did you have any information would be helpful

  • I have had Raynauds and Scleroderma for about 12 years now. I don't have osteoporosis per se but because I take a low dose of prednisolone (steroid) I also take adcal tabs (twice daily) and a once a week tablet of alendronic acid.I also have a bone scan every 2 years. Don't know if this has been of any help to you

  • Yes thank you any information is always helpful , these sites are so helpful when you feel alone and down with new problems all the time

  • Hi Lynbw, I too seem to have been suffered for years before I was diagnosed with Autoimmune Disorder. I starting having lower backpain in 1992, had to give up work eventually and have since developed osteoarthritis and all sorts of other ailments connected including Raynaud's and Scleroderma. You may need some medications according to your needs. Your doctors will give you all the information and take good care of you, I'm sure.

    When you attend any appointments make a list of questions and make a note of new symptoms, take it with you to remind you what you need to talk about.

    Good luck and best wishes.

  • Hi Lynbw. I was diagnosed with osteoporosis a couple of years ago. I was prescribed calcichew and an Alendronic acid tablet once a week( by my GP). However, the Alendronic acid exacerbated my acid reflux problems so my rheumatologist put me on a sachet of Strontium Ranelate nightly which has given me no problems. Hope this is helpful!

  • Thank you ,yes this is helpful will update when i see dr again

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