anyone have ing probs with digeestion ..dont know if its connected wiyh raynauds or something else .HELP !

[suzierwp330]

i am haveing digestion probs ,doesnt feel like food has gone down or fluids keep burping and wakeing in night with something in my throat ,help im scared !!!

[CWats]

You may have an underlying autoimmune disease. I too started with the raynauds and continued to have different symptoms. Turns out I have sceroderma (among many other things) which can cause reflux. See your rheumatologist or gp and have them run tests (generally a simple blood test). As far as the digestion you need to see a gastroenterologist who should do a swallow study. Good luck to you.

[Anteater]

I have terrible digestion problems even with medication. Food often gets stuck and I feel like I cant breath its very scary and it hurts when I swallow even with water sometimes. As CWats said you may have an underlying condition and Raynauds may be seconday to it. Best to get yourself checked out asap x

[suzierwp330]

thanx for advice sounds like the same thing will see gp asap ,let you know

[living-the-dream-ssc-ray]

I have scleroderma and the gut problems associated with it ! especially the acid in the back of the throat when lying down ! It can sometimes wake me up in the night ! I take omeprazole and try to identify trigger foods so I can avoid them ! as well as not eating too late ! Swallowing can be difficult if I am particularly stressed and again certain foods are an impossibility ! Its just about getting to know what you can eat ok - unfortunately my diet is not that varied due to this limitation ! I went for a few years of just eating bags of maltesers, as this was all i could cope with ! - not good ! as nutrition is sooooo important for being fit, healthy, and strong ! I now try and eat 3 snacks at least, per day including fresh vegetables and fruit when I can ! As afterall, your body is the temple for your soul to survive in !

[zenabb]

I suggest you see a rheumatologist. I went through all sorts of awful digestive troubles years ago until in the end I was only eating nuts, had very embarrassing wind. When a year later I went to see a gastroentologist he told me that I had disused my digestive system and made it sensitive to everything. He told me to try introducing foods one by one gradually. I said no, I will eat everything. He said I would find it painful and I did but at least I got back onto a normal diet and my body is the better for it. But that was the days when little was known about Scleroderma. Go to a rheumatologist.

[suzierwp330 in reply to zenabb]

ok thankyou will do

[karenconnie]

I have gastroparesis and on a j-g tube because I could not digest any food because of scleroderma. I know what you are going through go to your RA or your GI doctor to see if they can help you out. Good Luck with it all.

[suzierwp330 in reply to karenconnie]

thankyou

[SandraMarie]

I had CREST syndrome diagnosed some 8or9 years ago, having suffered with various symtoms for decades..The e is to do with the oesophagus (but the American spelling) and is when the scleroderma causes the peristalsis to cease. Hence difficulty getting certain foods down, generally dense solids such as, pasta, bread, meat, potatoes etc. I was virtually on a liquid diet, when by chance I saw a telly programme about historical diets,and The Edwardians had a diet that involved chewing their food 32 times, until it was a pulp. It was so obvious. I couldn't manage more than 20 chews as I also have problems with breathing now as well, but it worked, and very soon I was eating nearly everything I had before. I still can't manage sausages, but I was never overly keen so that's no great loss. Good Luck!

[suzierwp330 in reply to SandraMarie]

ok thanx for your time

[joba]

I had terrible burping at night when I went to bed. Once I went on Nexium for acid reflux, all that burping went away. Hope that helps.

[suzierwp330 in reply to joba]

pleased to hear that .it really scares me as i live on my own ,maybe a pill will help thanx

[overcomer]

Hi Sandra Marie, my name is Verna, I was diagnosed with scleroderma a year ago, I had some very stressful things to happen in my life, I've been having problems also with digestion, I'm due to see the gastro dr in two weeks. I noticed you said you are having breathing problems i am too, and have been diagnosed with pah I'm on oxygen only when walking and sleeping, it has improve. I've been precribed Adcirca 40mlg for pah and plaquenil for scleroderma. I just pray that all of us will improve very soon. keep being positive and never give up. Hope to here from you soon.

[suzierwp330]

ah poor you ,do yopu burp alot ?i do after just water its really embarrasing .hope i dont have to to have anything put down my throat to investigate ,if so i will have to be asleep .no can do .good luck and thankyou

[cherylann]

See a rheumatologist asap. Sounds like scleroderma. I take prilosec for the reflux before bedtime. This seems to help keep the acid from backing up into my throat while I sleep.

[suzierwp330 in reply to cherylann]

have been docs today been given lansopezole gastro -resistant tabs let you know how i go with theese .thanx

[uknlv]

I suffer from acid reflux badly due to my Scleroderma as well, I have a wedge under me that props me up so that I sleep in a reclined position. This has helped me alot, you can stack pillows behind you to but the wedge makes it really easy. I am on medication for the reflux and that combined with the angle that I sleep at seems to help. Also the suggestion to not eat late is good, I can not have anything big or heavy, as in a meal after 7pm or nothing works and I suffer all night. You definetly need to get this checked and controlled as the acid can cause damage to the esophogus and I have also aspirated the reflux on several occasions and that is definetly not pleasant! Good luck and I hope you get relief soon.

[suzierwp330 in reply to uknlv]

been given lansoprazoletabs for gastro resistant hope they work

[joba]

I have also elevated my bed (head only) by putting wood blocks under the legs of the headboard (4 inches tall). They recommend 6 inches, but I thought that was too much. Anyway, this really helped in keeping the acid down.

[suzierwp330]

hi ya have been docs gastro resistant tabs -lansoprozole see how i go

[uknlv]

I took the lanzaprosole for many years, one thing make sure you take it in the morning if you can. It works better that way, I was taking mine in the afternoon/evening and it doesn't work as good then.

[suzierwp330 in reply to uknlv]

im glad you said that as ive been told to take it in evening .i will see what happens first .and try a different time of day .just out of interest do you ever get any pins and needles or twiches ,also vibration .im getting this in my feet mostly and lower legs .its driveing me mad

[uknlv]

Yes, I get restless legs all the time. Its enough to drive me over the edge! Only thing I have found to help is to get up and walk around a bit. Doesn't always work but it helps. I used to get it very infrequently but now I have it all the time. I don't know of anything that helps, maybe someone on here does and can give us a helpful hint!

[suzierwp330 in reply to uknlv]

ok thanx for tip will get up and walla bit more thanx .lets hope someone else an give us a tip .

[Vickisu]

I have IBS, reflux, eat tums all day...Mylanta...take Prilosec, one pack after the other. been to the rheumy...as I said...diagnosed with sjogren's and fibro..raynauds, but not the Scleroderma? I itch all the time, sweat when I'm freezing, hands and feet swell for no reason. taking fluid pills for the swelling...potassium pills for taking the fluid pills. also taking something for itching...so what is it! stomach cramps all the time. anemic now, taking iron, to make matters worse.

[suzierwp330 in reply to Vickisu]

OMG i also have alot of sweating itching and my ankles really swell .taking quinin for cramps in my feet legs and hands .feeling fed up with myself at the moment .yesterday my elbow was painfull and woke up to red elbow and feel hard surrouding arrear .what ever next ?dread t think .what is sjogren's?

[Vickisu]

sjogrens is an autoimmune disease...typically known for dry mouth and eyes..thus all the teeth problems...but that's just a piece of the puzzle. It can also affect your organs, and causes stiff joints like 'arthur'. please go to sjogren's web site and find out more..you will be surprised!

[suzierwp330]

ok thanx will do .this gets more scarey by the day !

[VivianM]

I had CREST syndrome diagnosed 15years ago..I have the same difficulty to digest food so I unconciously preferred CANDYS because they are small and made from a concentrated solution of sugar in water which is easier to digest.

ADVICE:drink water when you are feeling difficulty..

[suzierwp330]

thankyou will do whats crest syndrome plz ?