I have been diagnosed with Systemic Sclerosis and all the rest of the CREST syndrome for 12 years now and my hands have been affected worse than anywhere. Due to ulceration I no longer have any full fingers or thumbs left and struggle with everyday life doing up buttons etc has been impossible for a long time.
Now to my horror I have developed an ulcer on my middle toe although up til now my feet have not been affected at all. Both of my second toes have lost all feeling and I have also developed a large shallow ulcer on the top of my foot making wearing any type of shoes impossible. I have had 4 ulcers on my ankles of both feet for 3 years which have to be bandaged so cant even get my Uggs on now!
I am housebound now so what on earth will I do when the bad weather comes?