World Scleroderma day Fri 29th June 2012

[living-the-dream-ssc-ray]

Hi everyone ! is anyone doing anything special for world scleroderma day ? I have emailed all of my local radio / media outlets letting them know it is world scleroderma day and a brief synopsis of the condtion. No tv debut yet lol

[SRUKadmin Partner RSA]

Thank you for doing so! We are holding an event on Bath on 3rd July to celebrate. If you would like more info please get in touch with the office. Thanks. RSA.

[Hidden]

hi Mayflower,would the event be in Bath (Somerset) ?Is it raynauds aswell ??

[SRUKadmin Partner RSA in reply to Hidden]

Hi, yes, down in Somerset. It is really focusing more on Scleroderma, however there will be times to chat to professionals, the RSA and other patients about Raynaud's.

[SRUKadmin Partner RSA in reply to Hidden]

Ps Thank you for spreading the word

[Hidden]

excellent,sounds good , will there be a conference room ,tickets only etc ??