I have had a stiff, very painful neck... - Scleroderma & Ray...
I have had a stiff, very painful neck and shoulder for 3 months- anyone else with Scleroderma had similar symptoms?
Yes, but it is difficult to know if it's scleroderma or arthritis. I went to the doctor and had an X'ray. Diagnosis: arthritis. He told me to have physio so I did and the pain is now gone. I have to do the exercises for ever everyday. I suggest you go to your GP. Good luck.
Yes I was told I had osteoarthritis in my neck, ended up seeing a neurosurgeon, who removed 2 discs in my neck. They had pushed into my spinal chord and damaged it. I am still very weak in my right arm, which I am told will never regain strength. I should get it checked out.
Yes. I'm the same, Zenabb. Its hard for them to tell whether its my arthritis, scleroderma, fibromyalgia, etc. My GP thinks it might respond to a mild anti-depressant but as I am already on two, for depression, he couldn't prescribe any more. I have found that heat helps it. When its really bad I put a towel on the radiator and once its nice and warm wrap it around my shoulders. It works for me. (
Same here- heat really does help- have been wearing a scarf and the shower is always a relief.
Thanks for replying
yes..........I have experienced the neck and shoulder pain
I also have had pain and tingling down the arms, headaches going up and over the skull and down the spine. I know I have a slight backwards slip of one vertebra in my neck but also have pain in symmetrical areas of my body, arms, knees, hips etc. Can anyone who has fibromyalgia advise me how they were diagnosed please? Thank you.
I was diagnosed approximately 25yrs ago with Raynauds. In June 2002 I was in Majorca with my Sister and I had the most awful pain in my left wrist. We went to a Pharmacy and the Pharmacist rubbed it with some Traxam (think that was it) and gave me painkillers for the pain. He also strapped my wrist for me. At first it was just sore every-now-and-again. Then it got worse. I went to my GP who thought it was Arthritis and gave me painkillers for it. Later he sent me to a Consultant Rheumalogist at the hospital. He diagnosed it as Fibromyalgia. Later again, he diagnosed me as having Scleroderma. So then it all just progressed - down hill. I was diagnosed with Primary Biliary Cirrhosis in July 2008 and told its genetic (my sister was diagnosed with it a couple of months after me). Just recently I've been diagnosed with Telangiectasias. After Christmas 2011, I was ill and had some problems with my pancreas so I have an appointment with my Consultant on 3rd May + hopefully she'll be able to help. When I get a hospital appointment I call my GP and let him know and he asks me to go to the Surgery, the week before, so that the Treatment Nurses can take blood for a full screen so then I can take the results with me to the hospital and so save a wee bit of time. Not sure if this answer helps any, Helen. All the best, M (
Thanks again for replyng and to my other question about stomach problems.You seem to be going through a hard time- do you struggle to keep positive?
xx
Yes indeed! I also suffer with severe Osteoarthritis and other troublesome conditions so every joint and muscle hurts and stiff 24/7. I have had what seems like frozen right shoulder for nearly a year but it is part and parcel of the same thing. The latest ultrasound shows the arthritis progressing to all the joints. Scleroderma also contributes to the pains and stiffness and the discomfort.
Pain relieving medications don't even begin to touch the pains, do they? I take enough strong medication to knock out a horse but they only just take the edge off the pains and stiffness sometimes. I am not sure what words of wisdom to impart to yourself but if it helps, I do sympathise and know exactly how you feel.
My doctor just keeps saying "what else can I do? You are on everything already" and throws up his hands in the air with frustration. Of course, the poor man and my Rheumatologist has been trying for years to help and I expect no more but I tell them all about it anyway, just so they can record the information.
The memory is not the full ticket either so heaven knows what else is left to go wrong. To be honest, I just go with the flow and take each day as it comes. Most of the time I just laugh at myself and all the peculiar things I have to live with. That's my coping strategy. Everyone is different and really these symptoms are no laughing matter.
Please accept my best wishes for more comfortable times. Good luck!
Graygirl1
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