sleep study update

[Tiggywoos]

dear all lovely members

I’ve posted previously about my ongoing headache (which i only get between 3am and waking ). You may remember I had a sleep study done basically wearing a watch for 2 nights .

It has taken me 5 months to get the results and I even had to write to pals in the end .

Results showed no evidence of any apneas no snoring . But the heart rate changes (especially between 3 and 5am ) recorded were consistent with PLMD (periodic limb movement disorder ) and apparently this can cause headaches according to lung specialist who read report .

My question is surely my husband would know if I was moving around all the time and does anyone else have PLMD ?

My GP didn’t agree with headaches being caused by PLMD 🤦‍♀️. Neurology cancelled my last appointment due to staff sickness . So here we are no further forward and still blighted every morning with hangover from hell.

Thank you for reading and I did say I would provide an update on sleep study 😊xxx

[soul22]

Good study

I get headaches if don't wear tooth guard tmj

Grind teeth in sleep it helps by half or more is that something you've tried on bottom teeth I have teeth missing dentist adjusted shape to allow for that.

[OldTed60]

Hi dear Tiggywoos. I didn’t see this post in time to reply here and so have already replied to you on the Lupus group. Have you had an MRI of your neck done recently I wonder? I ask because my neurologist and my former rheumatologist both were sure that my similar issue was related to moderately severe osteoarthritis in C5-C7. I get very little neck pain with this but apparently the localised muscle spasms present as referred pain in my head coming up the side/ back of my neck. It’s very position dependent for me and working this out with a good physio and using my old tempura pillow and good neck support when sleeping and travelling have really helped. When they are bad I take 5mg Diazepam and a 30mg Codeine with paracetamol to get on top of them - maybe once or twice a month. TMJ is also a contributing factor in my case and I was offered (but refused) steroid & lidocaine injections into my neck ie nerve blocks for the headaches X