Participants required for Raynaud's study

Hello my name is Danny and I am conducting a study into the effect of different temperatures on the hands of people with Raynaud's phenomenon/disease, using infrared imaging. Some of you may have read the advertisement in the RSA Hot News newsletter last month, and I thank those of you who have responded.

I am now almost at the stage of sending out information sheets to the volunteers who I have spoken with so far, but for the study to be more effective I would ideally like more participants.

The study will be commencing in March 2013, and will require a further 2 visits at the 6 month (September 2013) and 12 month (March 2014) interval for a subsequent test. The study location is the University of Glamorgan, Treforest (near Pontypridd), South Wales, Mid Glamorgan. I appreciate that travel may be difficult from afar, but if you are interested, and are able to participate, it will be greatly appreciated.

I am keeping the recruitment open this until Monday February 18th, to allow time for people to read this and (hopefully) tell anybody they know with the condition about the study.

Anybody who has the condition (at any stage and any severity) is interested, even just to the point of receiving an information sheet, is under no obligation to commit to the study, and may withdraw at any time , and without reason.

For further information and/or to express an interest in participating, please email me at dclegg@glam.ac.uk. Please note I am able to attend to emails this week up to and including Friday 8th February, however I will be away until the 18th February. Please note that if you email during the time I am away I will respond to you on the morning of the 18th.

Many thanks and hope you can take part!

Danny Clegg

16 Replies

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  • Hi Danny, Trish here, met you at the Cardiff Regional Meeting in October, name already down ;)

  • Thanks Trish, your name is indeed down :)

  • Hi Danny

    Just found this site and would be interested in joining the survey. any information would be helpful.

  • Hi the research I am conducting actually involves a study of the hands, and would require a visit to Trefforest in South Wales, Uk. If you are interested I am more than happy to add you to the mailing list. Just pop me an email to dclegg@glam.ac.uk

    Thanks!

  • Hya

    Its the hands which effect me the most, the feet I put up with. So yes put me on your mailing list please.

    Regards

  • Not a problem, could you drop me an email and I can send you one back with the information sheet?

    Many thanks

  • Hello Danny

    I am interested in participating. Please would you send me more information.

  • Hi no worries, could you drop me an email at dclegg@glam.ac.uk so I can send you the information sheet?

    Thanks!

    Danny

  • Hi Danny,

    I have had the same tests done at The Royal Free Hospital and the Dr that was doing the test had never seen a test that bad, im due back there on 18th Feb and i will try and get the picture and or results for you. If you are coming to London to do any more tests i would be willing to help you.

    Nicola

  • Thank you Nicola, I would be very interested in seeing the results. If I am ever running another study in your area I would be more than happy to include you. And if you happen to be venturing towards South Wales during March please feel free to request more information

    Thanks

    Danny

  • Thank you Nicola, I would be very interested in seeing the results. If I am ever running another study in your area I would be more than happy to include you. And if you happen to be venturing towards South Wales during March please feel free to request more information

    Thanks

    Danny

  • Hello Danny,

    This just came to my attention via Twitter today and I thank you as it also led me to this group. Geographically in addition to work commitments unfortunately I am not able to participate in this study but would be interested in the information forthcoming.

    With many thanks

  • Thank you for your comment, it is unfortunate you are not able to participate. I will be keeping everybody updated with any further studies, and hopefully will be able to disseminate the information from this study at a later stage!

    many thanks

    Danny

  • Hello Danny would love to participate but unfortunately not well enough for the journey, however my hands are worse claw like painfull all the time am waiting for illprost infusion which is to be arrange by prof Denton at the royal free in London hopefully this may help, in the mean i would like to join your mailing list thank you

    Dawn Redruth cornwall.

  • Sorry to hear that Dawn, I hope the Iloprost infusion has the desired effect. It is not a problem for you to be added to the mailing list, and I am happy to send you an information sheet by email as there is no obligation to participate by receiving this. Could you drop me a quick email at dclegg@glam.ac.uk so I can return the information sheet to you?

    Thanks

    Danny

  • Thanks Danny will do x

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