Hi folks. Well what can I say, we had our 1st ever meeting in Birmingham and it was a great success, no awkward silences, no stresses at all. We all had a very nice afternoon and the tea/coffee was flowing as well as the conversations. I would personally like to thank the folks that came, as per the photo, from right to left Mylreaclairelee,Winfeild1, Jen3131, my partner S and me, thank you for coming and making it so easy to talk to. The vote was to do it again so will be planning another one 2/3 months from now so watch this space. x
Update on how our meeting went. - Scleroderma & Ray...
Update on how our meeting went.
It was certainly a great idea to get like minded people together Avtar. Thanks for making it happen. A thoroughly worthwhile time together sharing and caring.
Looks good - hope there could be a London meet at some point
Hi FlexSW19, I think it would have to be someone nearer your end to organise it. I do come to London every so often but wouldn't feel confident in setting up a meeting as I don't know venues etc. Hope someone can set it up for you to attend as our meeting was great. You're always more than welcome to come along to our next one if you wanted to take a trip down here, understandable if it's to far though.
Hi all
There are more groups - see the SRUK website for the contacts. We enjoy our South London meet-ups.
Tea, cakes and a laugh are very therapeutic!
Wow I didn't know this and I am in South London. Is Raynaud's much of a topic at these meets or is it more about Scleroderma ?
In the South London Group we do all have scleroderma, though each very differently. But as we mostly have Raynaud's too, in the winter topics of socks, gloves and handwarmers do come up
It might be worthwhile making a annual meeting of all the groups in a more central location. It's just a thought and not immediately. But do agree and it being therapeutic.
I had a lovely time meeting you all - thank you for organising Avtargill31
Looking forward to the next one xx