lung specialist appointment - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,844 members5,412 posts

lung specialist appointment

Bronte007 profile image
4 Replies

Hello

After over 3 months of chest problems I have booked to see a respiratory specialist privately.- appointment 2 weeks. At the same time my nhs appointment came through - in 3 week’s virtually!! I have had 2 X-rays and a ct scan in past months as the gp thought I had chest infection and then PE ( not) and now ? Fibrosis?

My breathlessness has improved but now my biggest worry is my skin . My hands ( finger tips) became so hard and dry they cracked in jan / feb. I put it down to having 3 lots of gel/ acrylic nails plus the weather. They have improved but the tips now look like they are yellow / brown with broken capillaries? My cuticles are yellow with specs. The sides of my fingers are also yellow and dry. I moisturise around 6 times per day. The tops also look pitted . I am worried about schlerderma. The only thing I don’t have is the raynaulds . I wouldn’t be so concerned if I didn’t have these persistent crackles on my lungs .

my question is how long will the discolouration on my finger tips take to go or will this brown/ yellow staining always be there ?

Thank you and happy Easter to you all xx

Written by
Bronte007 profile image
Bronte007
To view profiles and participate in discussions please or .
4 Replies
Irishsettermad profile image
Irishsettermad

Hi do you get cold hands and feet? The cracks on the end of the fingers can be classed as digit ulcers. Have you been diagnosed with scleroderma?

Bronte007 profile image
Bronte007 in reply to Irishsettermad

Hi

Thankyou for your reply .

I haven’t had any diagnosis yet. I don’t really suffer with cold hands and feet but do have skin thickening ,patches of hard yellow skin with flaking and darkened areas.

Bronte x

Irishsettermad profile image
Irishsettermad in reply to Bronte007

I would see the Gp and ask for a referral to rheumatology. I have regular ct scans blood tests, my rheumatologist is fantastic he also sees me every 3 months. If you got a diagnosis they could look at medication etc

Bronte007 profile image
Bronte007 in reply to Irishsettermad

thank you for your advice. When I see the lung specialist I will ask for a referral if they don’t suggest one . My Gp has been a bit useless so I’m going private on my health insurance

You may also like...

waiting for lung function test

test since June and I am getting really worried. I have had a heart scan which was fine apart from...

RECENT HOSPITAL APPOINTMENT

my rheumatologist. I come away, having been informed I need to have an iloprost infusion (my first)

Fearful of upcoming routine appointments?

Contactability.\\" Its that time again to have appointments Lung Function, Cardio, etc. I'm so...

My Last Rheumy Appointment

anal leakage. The next appointment is in three months to see if the sibo improves. One thing I...

Shadow on my lungs

Recently I have had 2 CT scans, one with contrast, and they have found a 'shadow' on my lungs. I am...