I've recently been diagnosed with Raynaud's, but I have a couple of symptoms that don't seem to fit primary Raynaud's.
My Raynaud's primarily affects my feet, and when I was diagnosed almost every toe had an ulcer. I was diagnosed with primary Raynaud's, but since then I've read that only people with secondary Raynaud's get ulcers, so I wanted to get a bit of advice following on from my symptoms.
All the things that are weird and unexplained:
- rash on my right wrist to half way up my forearm that looks like psoriasis. It's really painful and has split in some places. It also feels like my skin is just tightening around my arm.
- painful toes all the time, but especially at night. Sometimes they are itchy as well
- numbness and pain in my fingers, especially in my thumb. Also my nail beds seem permanently blue/purple, but I don't really get bad attacks in my fingers, I get them more in my toes.
- weight loss and finding it difficult to eat lots at one time, but still hungry. If I eat too much, I vomit
- hair loss and thinning. I have a patch of hair at the front of my parting that has all but gone, and my hair seems to thin out more and more all the time.
- aches and pains in my knees, wrists, fingers, toes, and ankles.
- fatigue all the time. It is honestly so hard to functions sometimes because of it.
I'm on 5mg Nifedipine 3xday and that has helped a lot with the Raynaud's attacks and has pretty much cleared all of my ulcers over 2 months, but not helped with the other symptoms. I did get bloodwork done and everything came back normal including ANA and dsDSNA, and I don't have a high white blood cell count. My veins are apparently all normal as well. I didn't have a capilloroscopy done, but I don't know if I'm being overdramatic or if this constant pain means something. I'm a 21 year old female as well if that changes anything. Any advice would be really appreciated.