Rituximab

[cheryldn]

Hi has anyone been having Rituximab alongside Cyclophosphamide pulse infusions? This maybe my next course of action as I have just had my 5th cyclophosphamide infusion & there’s some improvement in my skin but not with my ILD.

Many thanks.

[momo17]

Hi cheryldn. That’s a shame to hear about your ILD. At the moment mine is stable With mycophenolate but I’m really interested in rituximab as everything else seems to be deteriorating fast! Do you mind me asking if your consultant suggested it? Mine was very dismissive when I asked about it.

Thanks

[cheryldn in reply to momo17]

Hi momo17, yes I’m under the care of Dr Lawson at Harrogate HDFT, who has been brilliant at seeing me all the way through Covid19, she is in contact with the Thoracic Dept at Leeds & I have a phone call assessment soon. The combination of this therapy is relatively new.

Good luck

[momo17 in reply to cheryldn]

Thanks so much for your reply Cheryl. Hopefully someone who has tried it can give us some more info.

Good luck in your treatment. Best wishes

[cheryldn in reply to momo17]

Thanks, in answer to your initial question, it is my rheumatologist who suggested it

[pino99]

Hi Cheryldn,

I had cyclophosphamide for six months with no improvement and then started Rituximab which worked wonders. I did not have them at the same time, though.

Pino

[cheryldn in reply to pino99]

Hi Pino

That’s interesting, I was on mycophenalate for 8 weeks when my symptoms got worse and then the cyclophosphamide which has made some difference but not huge. My Rheumatologist is talking about using the drugs in combination. I have skin issues & in my oesophagus which I can cope with but just need some sort of improvement with my lungs. Can’t walk long distances without taking lots of breaks😔

[pino99 in reply to cheryldn]

Hi, it sounds like we have very similar issues. I also take mycophenolate alongside the Rituximab. I’m glad to be done with the cyclophosphamide as I found it really aggressive.

I hope you find relief soon.

Pino