Update on Idiopathic Pulmonary Fibrosis treatment.

[marilynmcl]

Just a wee update on my previous post on being diagnosed with IPF. I have now been prescribed the drug Nintenidab and Mycophenalate has been removed as it had stopped being effective. There has not been any diahorrea thank goodness! But, have had a 'rumbly tummy' ever since starting on the new med. last week. I got onto my doctor and she has given me 'buscopan' on prescription although I can buy it over the counter and it does seem to help. Also, as the Nintenidab cannot be dispensed at my local pharmacy...only from the hospital... they have organised home delivery on a monthly basis for me so I don't have to pick it up from the hospital [thank goodness] as it is in a different town from mine. `

[Agedbiker]

Hi Marilyn MCL, thank you for the update I am due to start mychophenalate and nintedanib in 6 weeks time after my cyclophosphamide has finished. How is the nintedanib administered is it tablet injection?

[marilynmcl]

Hi Agedb. the nintedinab is a capsule...I have to take 2 a day..1 in the a.m. and 1 in the p.m. Just make sure as a precaution that you have plenty of imodium..diahorrea tablets to hand ...I did but not used them yet as must be lucky on this one!