Which one is the ***Rarest Form*** of... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Which one is the ***Rarest Form*** of the different types of **Scleroderma**???

8whitetoes profile image
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Because I'm now puzzled ....

Just over the past year ..., Now ..., I thought there were Several people being treated ..., (With ***Systemic Sclerosis Scleroderma***) along with my self at Vanderbilt In Nashville TN .... I very recently learned ..., I am **one of one ** or possibly ** one of Two**.... *Systemic Sclerosis* has been divided into different groups...

I was Diagnosed years before a blood test existed...

The Rhematologist was Absolutely the Best in my area ..., A gentleman so (Intelligent) he could examine (X-Rays) alone and honestly tell you point blank **The Autoimmune Conditions** ...A grate bedside manner..., TOO the point... No sugar coating !!!!

I

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Cole57 profile image
Cole57

As far as I am aware the rarest form of Scleroderma is Sine Sclerosis which effects the organs but not the skin. As you also said there are two subsets of Systemic Sclerosis which are Localised and Systemic. Which also have subsets of their own. But in general on here there are more than a few with any of the different subsets of Systemic Scleroderma. Myself included who has Diffuse Cutaneous Systemic Scleroderma. I’m sure quite a few others will come forward with the type that they themselves have.

8whitetoes profile image
8whitetoes in reply toCole57

This makes since now ...... So back to the drawing board ....., I got a feeling it ain't gonna be very good...... Thank you

Cole57 profile image
Cole57 in reply to8whitetoes

Goodluck with whatever investigations you do and the answers you find

Inamoment profile image
Inamoment in reply toCole57

That sounds like me, my skin is fine, everything else isn't

Bec9680 profile image
Bec9680

Some doctors are finally realizing that scleroderma & other autoimmune diseases are caused from viruses & bacteria in the body. Diet, anti viral herbs, fruits & antibiotics if bacterial helps to put in remission. These virus & bacteria laying dormant until immune system gets run down & causes immune system to go crazy.

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