Which one is the ***Rarest Form*** of... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,963 members5,488 posts

Which one is the ***Rarest Form*** of the different types of **Scleroderma**???

8whitetoes profile image
5 Replies

Because I'm now puzzled ....

Just over the past year ..., Now ..., I thought there were Several people being treated ..., (With ***Systemic Sclerosis Scleroderma***) along with my self at Vanderbilt In Nashville TN .... I very recently learned ..., I am **one of one ** or possibly ** one of Two**.... *Systemic Sclerosis* has been divided into different groups...

I was Diagnosed years before a blood test existed...

The Rhematologist was Absolutely the Best in my area ..., A gentleman so (Intelligent) he could examine (X-Rays) alone and honestly tell you point blank **The Autoimmune Conditions** ...A grate bedside manner..., TOO the point... No sugar coating !!!!

I

Written by
8whitetoes profile image
8whitetoes
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Cole57 profile image
Cole57

As far as I am aware the rarest form of Scleroderma is Sine Sclerosis which effects the organs but not the skin. As you also said there are two subsets of Systemic Sclerosis which are Localised and Systemic. Which also have subsets of their own. But in general on here there are more than a few with any of the different subsets of Systemic Scleroderma. Myself included who has Diffuse Cutaneous Systemic Scleroderma. I’m sure quite a few others will come forward with the type that they themselves have.

8whitetoes profile image
8whitetoes in reply to Cole57

This makes since now ...... So back to the drawing board ....., I got a feeling it ain't gonna be very good...... Thank you

Cole57 profile image
Cole57 in reply to 8whitetoes

Goodluck with whatever investigations you do and the answers you find

Inamoment profile image
Inamoment in reply to Cole57

That sounds like me, my skin is fine, everything else isn't

Bec9680 profile image
Bec9680

Some doctors are finally realizing that scleroderma & other autoimmune diseases are caused from viruses & bacteria in the body. Diet, anti viral herbs, fruits & antibiotics if bacterial helps to put in remission. These virus & bacteria laying dormant until immune system gets run down & causes immune system to go crazy.

Not what you're looking for?

You may also like...

Anyone struggling with the mental aspects of Scleroderma?

Hello guys, I was diagnosed last year with Systemic Sclerosis, Raynauds and and still undergoing...

Systemic Sclerosis Scleroderma ...AM I like the only one with this Night mare.. and no cure. Help I feel tormented by Everyone ...

THIS is my first post .... I have Systemic Sclerosis Scleroderma... My vocal cords are on fire .......

One of the Scleroderma patients

Hi All, I am new here and I found this forum/group along the way searching for info for...

Sore fingers with Raynauds

Hello. I've recently been diagnosed with systemic sclerosis which was a bit of a shock but I remain...

Newly diagnosed systemic sclerosis

Hi, I am a 54 female and have recently been diagnosed with systemic sclerosis. I had never heard of...