Restricted Shoulder movement - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Restricted Shoulder movement

naila_007 profile image
10 Replies

Hi everyone - just wondering does any one have restricted shoulder

movement eg Difficult to lift your hands on your head and above. Infact

even behind your neck! Any exercise suggestions? Going to try a sports

massage which did help with the legs and knees.....

Thanks,

Naila

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10 Replies
MEW53 profile image
MEW53

Naila_007,

I have shoulder issues due to some bad falls I damaged the rotator cuff on both shoulders at different times. I was amazed how exercises had changed within a couple of years. I had to be careful doing them cos of the Scleroderma.

I did go to Physio and tried to get the movement going.

One good exercise was to stand against a wall with a towel between your arm and the wall (you stand sideways on) and lift your arm straight up gently against the wall a few times. I used some small wrist weights 2 kg on each wrists (hands are so curled difficult to use hand weights) and lifted the arms straight up a few times on each side. You can do this sitting in a chair. Only do as many as you can and don’t overdo it.

According to the Physio she said massage just makes you feel good at the time, where’s the correct exercise improves the movement of the body.

Good luck

naila_007 profile image
naila_007 in reply toMEW53

Hi MEW53 - thanks for your reply - i will certainly follow the exercise you suggested. I also went to Physio today who gave me a few more and a referral to hydro. :)

Hi. I was diagnosed 2 years ago with SSc, RA, Srojens. I developed shoulder pain and restricted movement a year ago....worst was my right shoulder which got so bad I couldn't move my arm in any direction without excruciating pain and it almost totally seized up. My doc sent me for xrays which showed mild RA but nothing severe enough to explain the pain I was in. Then I was sent for physio.....which needless to say was impossible due to the pain. Anyway eventually I saw a second doc and she prescribed injection treatment....steroid plus local anaesthetic. The pain relief has been amazing....it did take a few weeks to work but I'm now able to move my shoulder probably 80% of normal movement has returned. The doc who carried out the procedure told me the problem had been caused by the scleraderma tightening the tendons rather than the RA. Anyway sorry to have gone on but all I can say is wow so pleased I had the injection treatment!

naila_007 profile image
naila_007

Hi,

Thanks for your response. I do have an appointment with the Sceloderma specialist this coming Friday - i will request an xray of shoulders to make sure there is no underlying damage. I can move them - just restricted - Oh dont like injections :( even though i have monthly blood test!

MEW53 profile image
MEW53

Sounds like Poppydingdong improved well with her injection, I tried an injection but made no difference, the gentle stretching exercises got me going again. Good you have a specialist appt soon.

Duttie profile image
Duttie

Hello, I have SSc, Sjogrens and RA. I also experienced weaking of the arms in particular. I was sent to a neurologist who diagnosed arthritis in the neck, I had no pain. The arthritis had caused the discs in the neck, between C5/C6 and C6/C7 to push into my spinal chord and permanently damage it. The disc were removed by a neurosurgeon and I was told I would not regain my strength, which I haven't. Worth an Xray of the neck as well? Enjoy your massage.

Duttie profile image
Duttie

I have just looked at your profile and find you are 7 miles from me. I also have a rheumatology app on Friday, at Salford Royal, 11.00 with Liz Wragg, is that where you will be?

naila_007 profile image
naila_007

My appointment is at 9.40am with one of Professor Herricks team - Liz is the specialist nurse :) - might bump into u - Am sure if you let Liz know am at the hospital too - she can introduce us :)

Duttie profile image
Duttie in reply tonaila_007

Hello, If you are seen on time (ha, ha) you could be long gone before I arrive. However in case you are still there I am about 5ft 2 ins , with short mousey blonde hair, likely to be wearing a black padded coat, with red scarf and gloves. My first name is Evelyn and Liz Wragg knows me well. Hope we could say a quick hello.

treesie profile image
treesie

I had crest for 30 years now I have SSC for 7 years and just developed the shoulder and upper arm pain when I reach for something and can't sleep on my side anymore. Just developed it 2 months ago OUCH! Can't straighten out my arm hard to even put a jacket on.

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