I am diagnosed with UCTD suspected to be Crest and Sjögrens, I am at a combined chest clinic in April as I have lung involvement consistent with minor lung disease. I have hiatus hernia am on lansoprazole and co-codamol 15mg/500mg for pain and muscle ache (my gp gave me that not rheumy!) but it doesn’t really help much. I also use hylo fresh for my dry eye. I have raynauds, extreme fatigue and esophagus involvement though this part is only minor at present.
I also suffer with IBS.
My question is last time I saw my rheumy I asked about Plaquenil and he wasn’t keen to try me on it as he said he isn’t a big believer in it working. If he felt like I do everyday he might be willing to try it !!! I feel like I’m recovering from the flu most days, it’s not good. If I try to fight through it I just end up sweating and feeling faint and poorly so I have to give in to it and lie down.
What are everyone’s feelings on Plaquenil ? Surely I can’t be expected to just carry on like this with no treatment !!
Rheumy hasn’t prescribed any treatment.
Lansoprazole was given by gp a few years ago for heartburn, I now know why.
Hylo fresh from optician for severe dry eye, again it’s all now tying together(Sjögrens)
Painkillers from gp as I couldn’t sleep with the pain
I have my next Rheumy appointment next week the 28th Feb.