I am 35 and ever since I started to develop first hint of breasts at puberty I have had bouts of extreme pain in them. I used to get it when walking to school in mornings as a young teenager. My mum said it was growing pains. I was never taken to a doctor about it. I had numerous issues growing up, extreme bullying, undiagnosed aspergers, dysfunctional family. Too much to go into. Painful breasts was not high on my list of what was most wrong with my life. The pain tended to happen when I was out so I never really was looking at the skin. Pain would go on for hours and was very distracting in school and later at work but I just never thought to go to doctor about it again because I had so many bigger even more distracting issues in my life. I sometimes googled breast pain but did not find any relevant answers until couple of years ago when I kept getting these painful attacks more frequently even while at home and was able to see the shocking colour changes going on. My nipples stayed blue and white so long and so often I thought they would die and drop off. Then I found that raynaud's matched my symptoms perfectly. But everything I read talked about it being related to breastfeeding. I have never had a child though. I can only assume I get it so badly in my chest because I have large almost permanently erect nipples. The only time they are flat is first thing in morning when I wake up but within a minute of being conscious they perk up. If i am awake then so are my nipples even though I have small breasts. I had to take a photo of my nipple colour changes in order to convince my GP who had never heard of raynaud's in nipples. Even then she looked it up online in front of me to prove I was wrong only to find that yes it is in the medical literature that nipples can be affected.
Yesterday was my first bad raynauds nipple attack of the cold season. It was not even just my nipples though, my whole breasts were affected and ice cold to touch. My partners have always teased me that I am cold as a corpse to touch in general. I often feel ho and bothered but my skin is still cold to touch. I have tried those gel nipple pads, putting pillow stuffing down my bra , hugging radiator hot showers, hairdryer blowing on me, fur covered hot water bottle up my jumper.
My GP did prescribe me some naproxen years ago but only to take occasionally which is no good when get multiple attacks a day all through cold season. Also I am not allowed to take it with Lithium which was prescribed for my bipolar. Since I have made a point of paying attention to skin colour changes i can confirm I also get raynaud's in my fingers, toes, ears, nose which can be painful but nothing compared to the breast and nipple pain. I was just wondering do other women out there suffer to this extent with raynaud's in breast and nipples even those who never had children? it has been 25 years of this now and my nipples have never fallen off so I guess it is not dangerouse but it really hurts.