Does this sound like scleroderma?.. - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

11,288 members5,728 posts

Does this sound like scleroderma?..

Frankosmythe profile image
1 Reply

Hi everyone.

For years I’ve suffered with fatigue, underactive thyroid, raynauds.

I’ve got osteoarthritis in my right knee and a bulging disc in my thoracic spine which is huge! (And inoperable)

I suffer with terrible brain fog, pain in my arms (burning in my forearm), pain in neck and shoulders, feel like I am walking on marbles, and have developed a small lump on my thumb knuckle.

I have a very borderline scl-70 reading of 0.9

My immunologist said he thought it might be scleroderma but now changed his mind? I’m seeing a rhumatologist next week but worried sick! It could also be fibro?

Any thoughts?

Written by
Frankosmythe profile image
Frankosmythe
To view profiles and participate in discussions please or .
Read more about...
1 Reply
SRUKadmin profile image
SRUKadminPartner

Hi Frankosmythe,

It is good that you're seeing a rheumatologist next week as they should know about all autoimmune conditions such as Scleroderma and Raynaud's and will be able to give you some more information on the test results you have.

We're sorry to hear that you're in pain and other symptoms too. Do let your doctor know all these symptoms when you meet. If it helps explain things to your doctor, you could print off this page and take it with you to your appointment sruk.co.uk/scleroderma/what... and also take a list of questions you want to ask when you're there. let us know how you get on. Best wishes

Not what you're looking for?

You may also like...

connection between Marfan and Scleroderma

My 15 year old grand daughter has sclerosis thus has badly twisted spine which is at the moment...

Does this look like raynauds?

My hands, nose and feet are always cold.I have my first rheumatology appointment next week for...
Kels1974 profile image

Scleroderma Sufferer.

I am 66 years old and have had scleroderma for 2 years but only been diagnosed for 6 months. I live...
Roselda profile image

Scleroderma recently diagnosed

I am seeking forum users experience with treatment with methotrexate which I’ve been advised I’ll...
Whistler81 profile image

Scleroderma affecting the colon? Does anyone suffer with colon spasm due to this?

I am getting pain in the colon, it feels tight and can hurt when passing a stool , cramp like...
AliW profile image

Moderation team

See all
JillWillSRUK profile image
JillWillSRUKAdministrator
AnnabelSRUK profile image
AnnabelSRUKAdministrator
Chicunique27 profile image
Chicunique27Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.