I have suffered with Raynaud's since I was in my teens (now 45) and in 2007 I was diagnosed with Sjogren's syndrome. My symptoms are overreacting to the cold temperatures, i.e even in the chilled/freezer section of the supermarket I get numb hands that turn white, cold feet and generally just feeling the cold differently to everyone else around me, my eyes are dry and I take eye drops daily and my mouth is dry and I chew gum most of the time to help produce saliva. My teeth and gums are all good. Every now and then I become very lethargic and get muscle/joint pains. My last blood test my ana came back 2560 speckled pattern, last time it was 1280 and I have slightly elevated RA. No other positive tests.
Currently I am trying to get life insurance and the insurers are really pushing back as they do not know enough about this auto immune disorder. In my mind I feel mainly fine other than reacting to the cold and having the dryness. I am pretty good most days and wouldn't really know I have anything. The insurers have asked for a detailed doctors report with a prognosis on how the disease will progress. I just wanted to get a feel for whether this is a progressive disease or are there people out there that just live with mild symptoms all their life?
If there is anyone out there that has started with the same symptoms as me and has had the disease progress I would like to hear your story.