Please can anyone help? I have CREST ... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Please can anyone help? I have CREST limited systemic sclerosis & suffering with gullet problems.

AliW profile image
AliW
6 Replies

I have tightness in the gullet & pain ....it has been there most if the week & I am reluctant to make a Rheumy appt. I do have mild Barrets oseophagus & have reflux. I am scared it's strictures does anyone else experience this?

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AliW profile image
AliW
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6 Replies
zenabb profile image
zenabb

I have the same but a long time ago it has stopped giving me pain. It could be because I had advice from the rheumatologist.

AliW profile image
AliW in reply tozenabb

What was the advice? Any help would be gratefully received as I am really anxious about the sclero in the gut tract :(

dojurols profile image
dojurols

I would see the Rheumy, you may need a ppi / antacids. Best not to neglect this, especially if you have Barretts'.

AliW profile image
AliW in reply todojurols

I do have Lansoprazole 30mg per day but am scared to take it due to long term side effects ( osteoporosis) Gastro consultant said only take 5 out of 7 days! Also I have dental implant & therefore I worry that Lanso. can effect the ossification of the titanium.

zenabb profile image
zenabb

It wo uld not be appropriate for me to tell what advice I received from my rheumatologist as we are all different.

Don't be afraid to see your rheumatologist and get proper advice in how to alleviate your symptoms. Ours is a chronic disease and we must not be afraid to know what to do to prevent symptoms.

titanicus profile image
titanicus

Ask you GP to refer you to the Hospital for an Endoscopy/Gastroscopy, this should clarify your problem, and the appropriate medication should help you.

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