Do any of you suffer with osteoporosi... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Do any of you suffer with osteoporosis ?

lynbw profile image
9 Replies

The specialist gave me tablets to try but i had awful stomach pain . i am going to have an infusion tomorrow and wondered if any one has had to have it this way , i would be grateful for any help thank you LYN

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lynbw
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9 Replies
Amherst profile image
Amherst

Yes I have had the annual infusions - much better than tablets. I had no side effects. I don't know as yet whether or not it has helped my bone density but certainly years on tablets didn't!

Good luck!

AM

judyt profile image
judyt

7 years on tablets and I still need medicating for osteoporosis so this year I opted for the infusion. Except for the pain of the cost I have had no side effects and will do it again for as long as it is advised.

Serendipity16 profile image
Serendipity16

Hi

My mum has had the infusions and her bone density improved after her last annual one they said to come back in 2 years. Hope it works for you

sylviagreenhalgh profile image
sylviagreenhalgh

my friend could not get on with the tablets and now has injections every 6 months which she tolerates well all the best

lynbw profile image
lynbw

Thank you for your replies i have had the infusion this morning no problem with it .. i was diagnosed with sever osteoporosis this year as i have compression fracture in my spine L1and t8 .also broken rib i am very happy to say i wont need another one for a year really happy with that LYN

livinginpain profile image
livinginpain

I have been diagnosed with moderate osteopenia, I was never given anything for it. It was discussed but that is all.

graygirl1 profile image
graygirl1

Hi Lyn. I do not suffer with osteoporosis and do not know the medications given to treat it. However, I have awful osteoarthritis of all major and minor joints plus degeneration of the lower spine. I have to take strong pain relieving tablets and prescribed omeprazole to protect the stomach.

I am not familiar with the infusion of which you speak but I am sending you my best wishes for a speedy improvement of your health following the procedure.

Graygirl1

lynbw profile image
lynbw in reply tograygirl1

Hi Graygirl 1.Thank you for your reply ,i also have bad osteoarthritis in most of my joints so i feel for you . i am on a number of treatments because of the scleroderma but the tablet i had taken caused a lot of pain i am pleased that i won't have an infusion for a year .i also send you many thanks for your reply take care best wishes Lyn

Gnomes200 profile image
Gnomes200

Have only had two infusions of Prolia, 6 months apart. Was wondering if that had anything to do with the first appearance of the "thickened skin" on my knuckles...could it be scleroderma?

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