EUSTAR and FESCA have developed a survey, in several languages, about the personal reactions of those with SSc to their disease. Anybody with scleroderma can answer this survey--you do not have to be a member of FESCA or to give your name. To date a thousand answers from Europe and almost the same amount from the US have been received. Some people are still about to participate and therefore the end of the survey has been postponed until the 24th of March.
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