Hi guys, well just had my first illoprost infusion I was admitted as an inpatient and come home last night. My first session was terrible and I nearly refused and come home. I live I cornwall redruth and not a lot of people with raynauds/ scleroderma down here, my first in fusion was started last sat where at first was all very good on 10 Mls per hour after 3 hours the nurse decided that she would up to 20 Mls hour later 30 Mls then my problems began sickness fever flushes dizziness well they stopped straight away, I was being monitord every 15 mins blood pressure temperature and heart , I was so poorly for a few hours after and I was going home as soon as I had felt ok to dressed, until a lovely nurse called Lesley came up to see me from the day care centre we had a lovely chat and she explained that she is in charged of these infusions and told me not to go just give it one more day on 10 Mls for the 6 hours treatment as she would stay with me throughout, so I thought ok so true to her world we started treatment the next day on 10 Mls and she monitored me every 15 mins . It was fine so carried on and completed the 5 days I wil maybe not see no change for upto 6 weeks or after another course of infusions, but am fine glad I stayed will go back for another course, the treatment has made me very hungry though where normally I have so little appetite and a bit like cold symptoms due to the fever I suppose and sneezing abit. Would just like to share my experience with others and thank u guys on here who shared your experiences with me, but I will add I could only be given the lowest dosage I know but if u have or are going to have this treatment I do recommend xxxx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.