raynauds and sceledroma (??) awareness month....

[littlemissshy]

apparently there is a r.a.s.a.m.?? if so how have people raised awarness in the past? i think we should all do something....not sure what you think....or when it is for that matter haha

[nanadx20]

littlemissshy...its the month of june...some have walk/run relays..some are contacting different celebrities....anything can become a fund raiser...schools...friends...find someone that is good at organizing...the color is teal for scleroderma... ~debi~

[SRUKadmin Partner]

Hi there. Raynaud's Awareness Month is in February of each year and World Scleroderma Day is on 29 June 2013. It is an excellent opportunity to raise awareness of each condition through events in your local area.

[littlemissshy]

okay thanks!!

[lizzy]

I raise awareness via face book every June, I put loads of info out there, this year I am also holding a Charity craft fair on 29th june, world wide scleroderma day, I have done a couple of fund raisers in the past,

[littlemissshy in reply to lizzy]

ooh, cool. thanks

[AHM42]

I hope that your craft fair goes well on 29th June. Very many thanks for creating awareness and raising funds for the RSA

Anne

[lizzy in reply to AHM42]

thank you, I just think we have to do what we can, and hope others will help us

[Springsong]

I agree with Facebook as a good route. April was Sjogrens month & I had a different 'interesting note' about the disorder posted to my page each day throughout the month - (e.g. one day it would be one of the symptoms, the next it would be a rough percentage/ratio of sufferors, the next it would be a reminder men can get it too....) it really is a good way to highlight some simple facts & make people more aware.

[littlemissshy in reply to Springsong]

great idea....thanks!!