Narcolepsy and catalepsy

[Ginger337]

Hi

I have always been a sleepy person. Since being a teen I struggled with afternoon lectures, I fall asleep in the car, and watching tv . My knees collapse and head lolls when I find something hilarious or if I am distraught. This extreme emotion is rare. This was normal for me, thought nothing of it. My husband realised it wasn’t normal and did some research (while I slept!).

I realise now I am likely to have Narcolepsy and mild catalepsy. I also have restless legs.

I am frightened to get a proper diagnosis because I am worried I will loose my driving license. Has anyone else in the uk got narcolepsy and had discussions with the dvla.

I have had this my entire life, it’s my normal. I know I need to sleep before driving long distance and I know I need a break after about an hour. I mostly just potter around locally (half hour journeys) and my husband drives any long distance. I also take a nap for half an hour in the afternoon to get me through the day.

My workplace is becoming more demanding due to staff shortage and I already covering the tasks of 3 staff. I want to declare my condition but worried about the official diagnosis will have on my driving license and insurance.

any advice would helpful.

Thanks for reading

[mauschen]

Hi Ginger 337,You are not alone. You have described my life exactly. However, my diagnosis is mild obstructive sleep apnoea and upper airways resistance syndrome.

In my opinion, you need a diagnosis, then you will know what you are dealing with and what treatments might be necessary.

I have been treated with CPAP since 2016 which has made an incredible difference to me.

I understand your fears especially as the DVLA are working on a backlog of cases. Making changes to your license might be a lengthy process

However, your health comes first, please get a diagnosis, you could be feeling better sooner rather than later.

Take care