pregnancy + sjogren: tips?

[rokis]

Hi everyone, 

How are we all?

I thought I'd share how life has been lately.

😀 I was recently introduced to a fellow Sjogren's sufferer (not sure if they are part of this community) who after years of struggle decided to build a platform for people like us. The whole idea is about being able to create your own care team so they can help you manage your sjogren's symptoms and all the other issues surrounding life with an autoimmune disease, at an accessible price. I think that is a brilliant idea! Here's the link for you all to check it out weatholdinghealth.com .

😪 On another note, as someone who suffers from Sjogrens + another autoimmune disease + rare incurable disease, sometimes life really kicks you in the bottom. The sun is finally out and I would love to enjoy it, but I am so tired and sleepy... and there is so much I'd like to achieve in terms of personal and career goals, but I need to prioritise rest and peace for my own sake. 

It does not help that I am also pregnant! Life is beautiful but it's all about balance. 

Anyone else feels the weight of their syndrome(s) sometimes? How can you be a functioning human being in a society that requires you to be at the top of your game in order to just survive, if your body cannot cooperate?

And if any of you is or has been pregnant, could you share your experience please?

Didn't mean to vent so much, but the reality of my own physical limitation is really getting to me at this point. 😔

[weathervane]

Hi rokis , I had my children before i was diagnosed with primary Sjögren’s, all i can suggest is to pace yourself to conserve energy, do things you enjoy and learn to live with the condition if you can so that it doesn’t weigh heavy on you . If you find this difficult do talk to your rheumatologist or rheumy nurse , best wishes 🤗