Lockjaw chronicles: help!

[Amakura]

Hi everyone

I hope you are all keeping well, remaining resilient, maintaining yourself care and of course, being positive the best that you can.

Over the past month, I've been experiencing increased episodes of lockjaw out of nowhere. Notably, it doesn't happen whilst I'm eating. It's inconvenient and painful, as I have to self-inflict great discomfort to align my jaw back into place. After doing so, the inside of my mouth becomes sore and tender. Anyone looking on would think that I'm crazy. If I don't forcefully do it, it would remain as is - wide open lopsided jaw.

Before diagnosis, I used to experience this but not as frequent as of late, so it didn't really bother me but now, it's recently gone rogue. Unfortunately, I had forgotten to ask the hospital whether this was a symptom. Sadly, I was discharged a while ago.

Is this part and parcel of Sjogren's? Has anyone experienced this before? If so, any tips would be most welcome.

By the way, I spoke with my dentist about this and his exact words were, it was 'a Sjogren's symptom, I'm afraid' but offered no remedies, so obviously my Agatha Christie senses were not convinced.

Thanking you in advance,

[Chris21]

not great when your jaw locks is it. I fortunately have only had a problem with it once when I had a root canal done, it locked shut! My dentist now has it on my notes that I’m to have a break in between any treatment 😂 my daughter also has same problem and like you has it quite a lot, she was referred to hospital dentist. She was told that the jaw slips out of the socket. She was given exercise to help and if it didn’t then they would have to do a small op to stop it slipping but that in itself could cause a problem of making it permanently lock and then would have to use a ‘key’ to open. The exercises have helped and so far have avoided any operations.

Both of our jaw problems are caused by hyper mobility, ( dentist diagnosis) don’t think the sjogrens has caused our jaw to slip but does cause sores inside and out of the mouth as well as skin peeling! Would it be worth talking to GP?

[Evonne02 in reply to Chris21]

i have the hyper mobility issue too. The sores and peeling. My dentist referred me to the dental hospital. They found id lock my jaw and clamp down on my tongue which resulted in a lump and polyp side by side on my tongue. Im also chewing the insides of my cheeks. Now im waiting for the hospital to sebd my dentist a letter to give me a gum sheild to wear at bed time. Nothing was said about sjogrens, my fibromyalgia, arthritis or hyper mobility syndrome 🤔

[Simonebirds]

hello I have been having this odd mouth open not shutting during sleep . Clinching as well , I have to get a mouth guard from dentist extensive . I have been stressed so am sure it’s contributing . This disorder is complex to say the least .