Sero negative

[donnabrain]

Hi.

Are there many of you here that are seri negative?

And if so, did it hinder your diagnosis

[Piscesdreamer]

Following. I tested negative last month, but have many symptoms of sjogren's and have an appointment with the Mayo Clinic this month.

[donnabrain in reply to Piscesdreamer]

Let me know how you get on

[Piscesdreamer in reply to donnabrain]

Will do

[Piscesdreamer in reply to donnabrain]

The rhuemetologist at the Mayo Clinic believes that a virus has/had attacked my vagus nerve which caused my Sjogren's symptoms. The symptoms lasted 20 days and have self resolved. I am to call if any of the symptoms return. Interestingly enough, I saw this article about mrna vaccines possibly reactivating dormant viruses within our bodies, like shingles/herpes zoster, Epstein Barr, and Lyme. My symtpoms started 14 days after my second Moderna vaccine.

medpagetoday.com/infectious...

[Di01]

Just had a blood test for this condition howeva they said hard to detect can one be so fatigued with this condition or just feeling tired as i have extreme fatigued & weakness ?

[donnabrain in reply to Di01]

Yes, fatigue is a major symptom

[Lari]

I was tested years ago with negative results. My rheumatologist has treated me for Sjogrens regardless.

[NorthAtlantic]

Yes, indeed, it was the salivary gland biopsy which allowed them to confirm the diagnosis

[Hidden]

Yes I have seronegative I think. Well I say I think because I was diagnosed by +ANA, high immunoglobulins and lip biopsy. I do have bad sicca but my biggest issues have been small fibre neuropathy everywhere and GI problems top to tail. And I now have a rare antibody for Scleroderma - which the rheumatologist says I don’t have. So they I think the high immunoglobulins and rare scleroderma antibody must be related to my Sjögren’s. But I’m antibody Ro & La negative.