Just learning about Sjogrens. I thought it was just about dry mouth and eyes.

[kalona46]

Im here to learn about it and how to help myself.

[Cas70]

This is the best forum but I would suggest you also join Sjogren’s.org - they have helped me so much. You can also be put in touch with a support group in your area. You will not feel so alone and you will pick up great tips to ease your discomfort. Good luck.

[SusieW2]

That's the best thing to do and how you take control. One of the frustrating things is that it seems to be something different for each person. I rely on a lot of alternative remedies to address symptoms since there are so few actual medications. Keep your environment well humidified, eat a low inflammatory diet, get sleep and exercise as much as you can even if only walking. Happy New Year, Welcome and best wishes!

[Chris21]

Hi kalona46,

If only it was just dry mouth n eyes 😄 I have sjogrens as well as lupus and never know which one is causing the problem. I have learnt that sjogrens is the one that causes my many UTIs. There are quite a few on this site that has various overlapping conditions and are very helpful with any help you need. I’ve also been in touch with the british Sjgrens society. Bit expensive to join, but do have their own forum where members can chat.

[Di01 in reply to Chris21]

Hi@chris21Interested in picking ur brain if i can ?.. do u know if u can take anti depressant while having both condition lupus & gjogrens ?

[Chris21 in reply to Di01]

Hi Di01, I know people do take antidepressants because of their depression who also suffer with lupus & sjogrens. It is with consultation of their GP so that they get the correct medication and dosage.

I have not known it to cause a problem to lupus or Sjgrens.

[Di01]

Okay thanks Chris21

[Di01]

Its doing my head in swallowing i seem to have mucus that lies at the back of my throat & then i'm always swallowing cant cough it up i'm thinking thats all going in to cause me more issues than good now Not coping with the dry mouth eyes r going brown on eyelids started two forms of eye drops but still running thru out the day nose drops & ear drops howeva ear drops only working on wax but i have a inner ear infection that i'm waiting on a&e to sort out then this wk my face went num down my neck in to shoulder then lymph node came up its all a bit worrying with everything getting leg sensations cant seem to move as much heavy legs & some twitching & spasms i'm also peri meno can anyone relate to this or give me some advice never thought i'd feel like this in a million yrs draining me totally

[Di01]

Chris21 u said u had lupus does this affect the feet tightness or stiff in them as well as top of the arms & if u have both of these conditions what helps in pain relief plz ?