Introduce yourself...: Why not leave a... - Sjogren's Support

Sjogren's Support

751 members192 posts

Introduce yourself...

HelenHU profile image
7 Replies

Why not leave a short comment below and introduce yourselves. Give as much or as little information as you like. Feel free to ask your own questions here: healthunlocked.com/write/sjogrens-support

Written by
HelenHU profile image
HelenHU
To view profiles and participate in discussions please or .
7 Replies
addisonwb profile image
addisonwb

Just completed the Sjogrens study. Looking forward to learning and communicating. Bill A.

Ncpoet profile image
Ncpoet in reply toaddisonwb

Hi Bill, glad we all have chance to continue our Sjogren’s discussions.

Judy

Mckesa profile image
Mckesa

My name is Staci, I am 47 years old and I have a couple autoimmune diseases including Sjogrens. I just completed the study and found it very helpful and validating to see what symptoms other people with SS have and the treatments they have tried. Looking forears to giving and receiving support.

JL1w profile image
JL1w

Hi I’m new to the group my name is Jane I have been struggling with my health after I was diagnosed in 2015 with Sjorgrens, lupus SLE , hashimoto, and smouldering myeloma (blood cancer ) - I had hypothyroid for 20 years previous - latest problem is I’m on prednisolone and have developed Cushing’s syndrome and gone into adrenal suppression so as a matter of urgency I am slowly trying to reduce off steroids in the hope I will start to produce my own cortisol when I get to a low dose - so the side effects such as severe joint pain is horrendous I’m pleased to try ans get off in one hand as I have put so much weight on but I know I need them to function in life - be great to chat to you all and get to know you ! X

harmony2 profile image
harmony2 in reply toJL1w

Hi. Been reading various posts. How has it gone getting off prednisolone? Yes, joint pain while reducing stinks! Are you off completely?

Harmony2

Hello, I've only just found this group. Back in 1987 (aged 36) I was diagnosed with RA and secondary Sjogren's Syndrome. I was seronegative for a number of years. Then I had Breast Cancer in 2012 and after treatment my rheumy told me I was seropositive. I developed Vasculitis and osteoporosis. My RA and Sjogren's intensified. Glad to find you all now.

clkentrn profile image
clkentrn

Hello I am clkentrn (CONNIE) I have multiple autoimmune diagnoses and am looking forward to interacting with everyone and getting new information as well as tips for surviving my compromised immune system.

I have Sjogren’s, PBC, rénal failure, psoriasis,

Arthritis very low BP, and whatever else I cannot remember right now due to brain fog!!!!

I look forward to hearing everything you all have to say!

Hugs,

Connie

Not what you're looking for?

You may also like...

blue blocking lenses

I've been reading that many of us suffer from light sensitivity especially under some artificial...
SusieW2 profile image

Bladder

Hi I have recently been diagnosed with Sjorgens , I have suffered bladder problems such as pain and...
cloverboots profile image

Balance Issues

Has anyone had balance problems? I woke up four weeks ago unable to walk without staggering. Head...
Ncpoet profile image

Saw Rheumy today.... a joke!

Today I saw a rheumatologist. I was referred because I was diagnosed with connective tissue in my...
UrsaP profile image

If I dont have a dry mouth could I still have sjogrens?

I have had an operation on my eyes, lens replacement last year, I now have awful dry eyes, when I...
tmoxon profile image

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.