Eye Problems: Hi all, I was diagnosed... - The Australian Sj...

The Australian Sjögren's Syndrome Association

2,466 members787 posts

Eye Problems

Mazzi47 profile image
4 Replies

Hi all, I was diagnosed with SS earlier this year and to tell you the truth it was a relief to actually have a reason for the multitude of symtoms i have had over a 2 yr period. I didnt realise exactly how dry my eyes and mouth were until I was diagnosed and treatment began. I also have Rheumetoid Arthritis and chronic fatigue.

But recently I started having eye problems, I woke up one morning with my left eye glued shut and very swollen, my first though CONJUNTIVITIS! But no I have Iritis....... it took a lot of Dr and Optomitrist visits but finally this was the outcome. Since this began I now have sensitivity to light especially sunlight, I cannot go outside without a hat and sunglasses even when its overcast.

Has anyone else had this issue? I would love to hear if anyone has nay other suggestions apart from the steroid eye drops, hat and sunglasses.

Written by
Mazzi47 profile image
Mazzi47
To view profiles and participate in discussions please or .
Read more about...
4 Replies
kerriebn profile image
kerriebn

Yes I have. I use Sistane drops every 2-3 hours and have also found steaming your face and eyes over a bowl of water helps.

Mazzi47 profile image
Mazzi47

Hi, thanks for that, I have Systane but I also use Therra Tears Liquid during the day as they are in seperate ampules that you can recap them and Therra Tears Gel of a night as its a bit thicker and helps minimise any stuck eyes in the morning.

dryjulie profile image
dryjulie

I also have big problems with my eyes, more being very dry than sticking together. I swear by thera tears, i go thru 16 boxes a month and have a special script to get the boxes for the price of 1 script. I also now wear wrap around cycling glasses which is the best thing I have ever done for protection against the elements. The glasses are called the "Rudy Project" which you will see on the net. I hope some of this will be helpful to you, good luck.....

Spice profile image
Spice

Hi I recently came back from a seminar on SS at the Auckland Hospital New Zealand. A guest speaker ( an eye surgeon) explained the three levels that tears are made of and it is the oily part that clogs up. He said to apply a hot flannel to your eyelids (eyes shut) in the morning when you wake up for a minute or so. This helps the oily secretion release more. I also gently work aqueous cream (or any mild moisturisor cream) around my eyelashes at night and have found this helps a lot. Also to the person who recommended OraMd for a dry mouth. Thank you for this hint. I am now using this. Had to work out what suited me re its application but now get a better sleep (not being woken in the night with a drymouth) and don't have a furry mouth or teeth in the morning. Seems to keep a small saliva covering in my mouth on into the morning when chewing etc keepts that more activated anyway.

Good luck its all trial and error and very individual on this SS walk that we are on. Cheers

Not what you're looking for?

You may also like...

Sjogrens and outdoor work

Hi All, Just wondering if anyone has had any advice about outdoor work. I am a PE teacher, and...
AnneB123 profile image

dry eye relief

hi there i have had dry eye quite badly but only in my left eye. I tried the various drops but none...
eyedry profile image

gastro problems

Hi everyone, was diagnosed with sjogrens in 2012 and after trial and error have been able to manage...
Cassiecat profile image

Loss of sight in one eye

A friend has Sjogren's but she has no internet access, so I offered to post this. Gradually over a...
Circus12345 profile image

Dry eye, mouth, skin. Sjrogens Syndrome

Im new here but I am also diagnosed with Sjorgens Syndrome. I have dry skin, chronic dry eye and...
Lucyand profile image

Moderation team

Belindasan profile image
BelindasanPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.