Lost Voice: Hello I am seronegative... - The Australian Sj...

The Australian Sjögren's Syndrome Association

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Lost Voice

Whatamess2 profile image
2 Replies

Hello

I am seronegative Sjogren's. Since October I have lost my voice 7 times for about 10 days at a time. I am also experiencing throbbing pain in my ears and throat but not constantly. I am awaiting an ENT appointment.

Anyone else had thie experience with losing their voice?

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Whatamess2 profile image
Whatamess2
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weathervane profile image
weathervane

I lost my voice for 12 weeks many years ago and i was given exercises to stretch my throat which did help, maybe be worth asking ENT . I hope you your appointment goes well as it is so frustrating, best wishes 🌸

SweetJane1 profile image
SweetJane1

Hiya!

Sorry I missed this when you first posted it - I am seronegative (possibly Sjogrens) and have had terrible voice problems.

So far no one has suggested a connection between voice loss and my other symptoms but I think there has to be one.

Interested in hearing if you have any updates?

I first went 10 weeks with what I then called laryngitis and recently emerged from 5.5 longggggg voiceless months, though no pain as you describe.

I saw an ENT but found the most breakthrough with the help of a speech pathologist.

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