Hi. I have found out I have SS this year and have a number of problems - eyes, gastro, etc. However the biggest thing that worries me is tremors that have developed. I have tremors in hands and legs, worse on left side. Feels like they go up into my back. At times, particularly with exercise, my legs tremor and spasm madly - and I am almost unable to control them. I am also woken from sleep by the tremors in my back. I am a 44 yr old woman with small children and am pretty scared by what is happening.
My doctors are not even sure the tremors are from the Sjogrens.
I would very much like to hear from anyone else with tremors, and details about; where they are, how frequent they are, what triggers or aggravates them, how quickly was the onset, how long you have had them and any successful treatments tried.
Looking forward to any feedback and suggestions.
Thank you very much