Disability and HBSC: Has anyone ever... - Sickle Cell Society

Sickle Cell Society

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Disability and HBSC

Cya1117 profile image
3 Replies

Has anyone ever gotten disability from having continuous crisis with HBSC? My sister gets crisis often and it stops her from being able to work. She misses days at work and is getting to the point we’re she may not be able to work anymore. If anyone has any information or insight on the subject , I will really appreciate it.

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Cya1117 profile image
Cya1117
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Anzy profile image
Anzy

Hello, I'm so sorry that your sister has been feeling unwell. I work part-time because a full time job is far too exhausting and I always end up in hospital. I applied and am receiving PIP. She should try and do the same, the form is rather arduous but it's worth it in the end. Also she should try alkaline water it's worked wonders for my disease. I hope she feels better soon.

Cya1117 profile image
Cya1117 in reply toAnzy

Thanks for your Reply.

mmjegs12 profile image
mmjegs12

When filling in the form for your sister, please make sure you tell them your worst days possibly, even when your feeling great

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