My son has sickle cell trait - Sickle Cell Society

Sickle Cell Society

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My son has sickle cell trait

Enjoylife7 profile image
3 Replies

Docs keep saying my 6 yr old is fine.he's not . he always has a pale face and white lips and dizzy .I'm doing more research and taking him back to docs so he can get more tests . i m thankful for this sight to hear we are not alone

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Enjoylife7 profile image
Enjoylife7
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3 Replies
bluebug profile image
bluebug

If he has trait but is not well then it's likely he's vitamin and/or mineral deficient. Have they tested his iron, vitamin D and vitamin B12 levels? Doctors often have to be fought with to test these.

sophiaalma profile image
sophiaalma

Hello, he may have SC ....it is sometimes diagnosed as just sickle trait but it is a combination of sickle and a mutant cell. AA is normal .... SA is the trait and SC can mimic the full blown disease under certain conditions which put stress on the body.

Pachi profile image
Pachi in reply to sophiaalma

Can you explain a bit more. I have Sickle cell trait and beta thalassemia. I am 45 and in general healthy, not overweight. I have had two episodes, one about three years ago, I was in Bogota Colombia, I am from the Coast of Colombia, and I suddenly had vomita, diarrea and exhaustion. Yesterday I was traveling from Galapagos Islands, where I did three hiking trecks, with plenty of water, and about one hour after arriving in a city near the Quito Airport, another high altitude city, I had the exacto same type of episode. The pain in my bones was of a type like I flete they were about to break. They were sore even if I crossed my legs.

I flew back at 6 am, and drank pedialyte until 5 pm. Now I feel better but very tired.

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