Posts - Living with Sickle Cell Disease | HealthUnlocked

Living with Sickle Cell Disease

491 members • 108 posts

All posts for August 2017

New to this group site.

Hi everyone I'm a SCD patient. I'm 24 y/o and I have known I have had sickle cell since could remember. I watch my mother deal with me and this illness when I...

Hi everyone I'm a SCD patient. I'm 24 y/o and I have known I have had sickle cel...

UniquePassion24

•7 years ago

SCD and Nutrition

It’s such an important topic and so little attention is given to it! Besides being weighted every time I go to hospital (appointments, examinations,...

It’s such an important topic and so little attention is given to it! Besides bei...

•7 years ago

Top 3 tips to reduce and manage SCD symptoms

Like other long-term illnesses: - A holistic, multidisciplinary approach - nutrition counselling, psychological support, physical activity, relaxation...

Like other long-term illnesses: - A holistic, multidisciplinary approach - nutri...

•7 years ago

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3 tips to reduce and manage sickle-cell anaemia

1. Meditation - It has saved my life many times over. Being able to reduce stress in my daily life and handle the pain when I am actually going through a...

1. Meditation - It has saved my life many times over. Being able to reduce stres...

•7 years ago

What are the positives of being born with SC

I think SC is horrible, debilating but I also think it makes you look at life in way that people don't. Resilience is our middle name, survivors is our crown....

I think SC is horrible, debilating but I also think it makes you look at life in...

•7 years ago

My 3 top tips to SCD symptoms

1. Avoid stress, if going out for an appointment try and leave plenty of time ahead of the appointment to avoid rushing. Know your limits. Having a good sleep...

1. Avoid stress, if going out for an appointment try and leave plenty of time ah...

•7 years ago

How has SCD effected my family life.

I live alone now, that greatly concerned my 36 yr.old daughter who know how these can sneak up one me. We have never told her sons when I've been in hospital...

I live alone now, that greatly concerned my 36 yr.old daughter who know how thes...

•7 years ago

Would you be willing to participate in experimental treatment or research for sickle cell disease?

What concerns or fears would prevent you from participating in research or a clinical trial for sickle cell disease?

What concerns or fears would prevent you from participating in research or a cli...

•7 years ago

What are your biggest worries about your future with SCD?

Share your experiences and interact with other members in the comments below! :)

Share your experiences and interact with other members in the comments below! :)...

•7 years ago

SCD treatments.

As far as I know there is no cure for SCD. The Haematologists in the UK, try to manage the painful episodes with strong opioids e.g. OxyContin, morphine,...

As far as I know there is no cure for SCD. The Haematologists in the UK, try to ...

•7 years ago

What treatments are you taking for Sickle Cell disease?

What are the pros and cons of your medications and treatments? Share your experiences and interact with other members in the comments below! :)

What are the pros and cons of your medications and treatments? Share your experi...

•7 years ago

What has your experience with the healthcare system been like?

Has sickle cell disease hindered your ability to access healthcare? Is there a general understanding of the symptoms of sickle cell disease and its symptoms?...

Has sickle cell disease hindered your ability to access healthcare? Is there a g...

•7 years ago

How has sickle cell disease impacted your family life? How much do friends and family understand about sickle cell disease?

Share your experiences and interact with other members in the comments below! :) Research questions will resume on Monday, enjoy your weekend!

Share your experiences and interact with other members in the comments below! :)...

•7 years ago

How does sickle cell disease affect your day-to-day life? What activities does sickle cell affect the most?

What things do you find most hard to do when you have symptoms? Share your experiences and interact with other members in the comments below! :)

What things do you find most hard to do when you have symptoms? Share your exper...

•7 years ago

What sickle cell disease symptoms do you experience? What symptoms are the most severe?

Have your sickle cell symptoms changed with age? Are there any specific triggers for your symptoms? Share your experiences and interact with other members in...

Have your sickle cell symptoms changed with age? Are there any specific triggers...

•7 years ago

Looking for a GP with knowledge of SCD in Cambridge

I have recently moved from Berkshire to Cambridge and I am looking for a GP with knowledge of SCD in Cambridge. In Berkshire I was referred to the Hematology...

I have recently moved from Berkshire to Cambridge and I am looking for a GP with...

•7 years ago

How did you feel when you were first diagnosed with SCD? What advice would you give to someone recently diagnosed with SCD?

Welcome to the first day of questions on Living with Sickle Cell Disease! We're excited to see your responses and have you interact in the community! The...

Welcome to the first day of questions on Living with Sickle Cell Disease! We're ...

•7 years ago

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3 tips to reduce and manage sickle-cell anaemia

What has your experience with the healthcare system been lik...

SCD treatments.

SCD and Nutrition

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