Welcome to the Living with Sickle Cell Disease Community for support of sickle cell disease!
We’re very glad you have chosen to be a part of our community. The Living with Sickle Cell Disease community supports individuals affected by sickle cell disease. Whether you are an individual who has been diagnosed, a care-partner, family member, or friend, we hope this community is a safe and supportive place for you to share your experiences and find information and support.
This community is moderated by HealthUnlocked.
The Living with Sickle Cell Disease community is part of HealthUnlocked, a network of over 200 conditions and wellness communities from organizations you know and trust. By using HealthUnlocked (HU) you are accepting these posting guidelines and agree to HealthUnlocked’s site Guidelines and Terms of Use. Members of the Living with Sickle Cell Disease should read HU’s Guidelines in conjunction with the Living with Sickle Cell Disease Community Guidelines outlined below.
HU Community Guidelines: support.healthunlocked.com/...
HU Terms of Use: healthunlocked.com/policies...
Below are the Living with Sickle Cell Disease Community Guidelines, which are aimed at creating and maintaining a safe and supportive community for all of our members. Many of HU’s guidelines are repeated here.
Professional Health Information:
The Living with Sickle Cell Disease Community strives to provide useful, up-to-date information on matters of concern to individuals with sickle cell disease and other members of this disease community. The information posted on this site should not be used as a means of diagnosis, determining treatment, nor replace the relationship between you, your doctors and other healthcare professionals. For diagnosis and treatment options, you are urged to consult your physician.
Community Atmosphere:
The Living with Sickle Cell Disease Community is a safe, supportive, informative, and friendly community for people affected by sickle cell disease. Your participation in this community should be with respect, honesty and in the spirit of supporting and learning from fellow users.
Please note that members may be located worldwide. As such, details on approved medications, treatment protocols, healthcare, insurance, and other related topics may differ and should always be verified depending on your specific location.
Posting Content (Posts/Questions/Replies/Private Messages):
Content posted by individual members does not represent the views of HealthUnlocked.
Posting content on this community is taken as your agreement to post information that is true and accurate to the best of your knowledge, and is primarily drawn from personal experience. You are encouraged to post content about your own experience with sickle cell disease (or that of a loved one), ask questions, and offer support and advice.
Content should never be abusive, derogatory, sexually explicit or suggestive, or deliberately misleading. If you believe someone else’s content violates this rule, please report it via the “Report Abuse” option or via the “Feedback” button. Content that is felt to violate this policy will either be edited or removed. All feedback reports are read by moderators and it is their judgement on what action, if any, is taken.
HealthUnlocked is not responsible for any offence or injury that a member may draw from another member’s content.
Any content posted on this community can be read, used, reproduced, and cited by other users of the site. You have the option to delete content you posted.
When you post third-party information, such as information about new treatments, you are asked to provide references and links to sources wherever possible. Please ensure links are to a reputable site.
Moderating Content:
Content posted on this community is moderated by HealthUnlocked. Moderation occurs only after content is posted.
Moderation helps maintain a safe, positive environment for all members of the community. Content may be edited or removed to ensure that the community remains supportive and responsive for all members.
The community is open 24 hours a day, 7 days a week. Moderation occurs after posting and primarily between the hours of 9 AM and 5 PM BST Monday through Friday.
Solicitations:
Please note that HealthUnlocked does not endorse or recommend any specific products, services, therapies, or activities mentioned by any third party (individual or company).
Online Safety:
In this community, there may be discussions of health-related issues and sharing of personal information.
Please note that the Living with Sickle Cell Disease Community is an open site, meaning that any posts are searchable by internet search engines and can be shared via social media platforms. If you would rather your content was not searchable or shareable, you can select the visibility status of your post as visible to “Only followers in my community” before you click submit.
For your own safety, you should not disclose personal information such as your full name, email address, home address, telephone number, or any other information which could directly or indirectly identify you.
For more information on general online safety guidelines please visit: consumer.ftc.gov/articles/0...
Sickle Cell sucks