First time posting for me on here. Sorry if it's a bit of a long one. I'm still in the investigation stages of my symptoms. I was told I probably had Endometriosis back in December and had a Laparoscopy today where no Endo was found but biopsies of my uterus lining was taken and what they thought were uterine polyps were also biopsies.
Unfortunately I didn't get much info before I was discharged 🙁 that was all I was told. And to wait to hear back.
I'm not panicking or anything 😊 I just like to stay as informed as possible. Can I please ask anyone who has been diagnosed were there any significant symptoms they experienced? I've been having loads of pelvic, like a pressure coming from inside and right side and hip pain, sometimes it's really bad and I can't stand up straight when I go from sitting to standing. It seems to be worse when sitting or lying down. I'm also having a lot of between period bleeding (approx. every two weeks). I'm unsure if the polyps alone could be causing that much pain. I have hope the bleeding can be helped with polyp removal.
Any advice would be so appreciated ❤❤
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redthedog85
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I’m so sorry to read that you are being forced to wait around for some dx - can imagine the distress. Good that they took tissue to be biopsied and hoping they don’t find cancer.
Have you had any scans? The bleeding between periods isn’t great, but the cause could be found in the biopsies. It’s the cause of the hip pain and the pelvic pressure that might found in a scan.
Don’t rush to guess what’s going on, but do stay on top of your doctors to determine what’s causing these symptoms. Keeping a diary or list of specific symptoms can help. If you need a second opinion, don’t hesitate. You are your own best advocate.
Also, please bring someone with you when you see your doctor. Always best to have a second set of ears taking notes for you.
Wishing for-the best outcome for you. Let us know what your dx is.
Thanks so much for replying. I had an abdominal ultrasound and a TV ultrasound back in November and a Cystoscopy after bleeding for three weeks after not having a period for years and having dull pelvic pain. All came back clear. They originally thought it might be my kidneys. I'm not post menopause, I'm 39 but have been on a continuou pill with no breaks for years and was taking them as normal and began to bleed out of nowhere. Since the three week bleed it has been pretty much every two weeks sometimes heavy sometimes light (these symptoms have been ongoing since September). The pelvic pain has never let up and only got worse.
I had a smear back in October to check if there was anything cervical happening, the nurse couldn't perform it as she saw a polyp, I bled immediately when she started to do it. I was referred to have it checked out and my referal was rejected 🙁 I was told to go back in 5 weeks (!!) I got an earlier appointment with a gynaecologist after pushing my gps. He did my smear and said he couldn't see a polyp and said the nurse shouldn't have said what she said and she over reacted! I know that if a polyp has a stalk they can come through the cervix and be visible, other times they aren't. So obviously now I know he was wrong. He also told me it was all hormonal and to do nothing about the pain, there is nothing causing it. I left that appointment in tears. He wasn't keen for me to get a Laparoscopy but I pushed again. So I waited from December to yesterday in loads of pain and bleeding and I'm so exhausted 😅
Can I ask do you know if they always take biopsies from a Laparoscopy?
I’m confused, have they scanned your hips - or basically your lower half? Are they checking your ovaries? If you are having this much pain, it makes sense to ask for a ct scan .
It’s disgusting that a doctor would dismiss your pain!
I'm confused too! They didn't want to do any more scans. I know ultrasound can miss things. I felt every time I showed any sign of knowledge to do with what my symptoms might be because of I was shot down and dismissed. I had a female doctor who just shrugged at me. It's been a fairly disappointing experience but as I've since found out from forums one that A LOT of women have had to go through 💔
They didn't remark anything about my ovaries on the letter I received after seeing the gynaecologist.
I have had bloating, urinary urgency and frequency increases, bowel changes too. All very unusual for me.
When I bleed I don't have any of the period associated changes either. I always got swollen tender boobs during periods when I had them before I started the mini pill but I don't get that during this bleeding.
I stopped and restarted using the continuous pill, suggested by the gynaecologist to regulate the bleeding again. I've been back on it 5 months and I'm still bleeding through at least twice a month.
The pill can affect hormones. I am much older than you, but when I took the pill about 35 yrs ago, I was for endometriosis. I bled between periods - pretty much nonstop. I had to get off it after 9 months. The pill either had low or no estrogen at my request. It did the trick - never had endometriosis again.
Please persist. Drs saying they don’t see anything is not acceptable. Ask for a ct scan. It’s not in your head.
So first, I'm sorry you're going through this. I am also sorry you have experienced being dismissed and told to live with the pain. That is ridiculous. Always fire those doctors and get someone who has more concern for your well being.
I was dismissed for four years. They kept telling me my bleeding was perimenopausal. I had light spotting so it was easier to dismiss. No one even did an ultrasound. I didn't know any better. I knew nothing about uterine or endometrial cancer. I know now, that the spotting between cycles that I had is a classic sign of the cancer. However, I wasn't on the hormones that you are. I have no idea how your pill changes things. If that can be the cause of your bleeding.
It does sound like now they are doing the right testing for you. The biopsy of your lining and the polyps are important. Basically now, you have had a procedure and the biopsy sample will be sent to the lab and hopefully you will get some more clear answers.
I know the waiting is the hardest and can cause some stress. So just try to distract yourself for now as best your can and then go through each step as it comes. Step one is getting info from your biopsies.
As far as other symptoms and pain ... I did have hip pain and back pain but I had injuries. After I was diagnosed with endometrial cancer, I asked if the back pain could be related. My doctor said they didn't know. After surgery, I found out I also had undiagnosed endometriosis. My doctor thought maybe that had caused my pain. Guess what? Post surgery, I still have pain. Hormonal shifts in perimenopause amd menopause can cause these pains too. But I know you are younger. So for me, the pain may have been a mix. Injuries, fluctuating hormones, endometriosis. For you, I don't know. But from support groups, it seems like many women experience these types of pain. Surgey may or may not help that depending on the cause.
Anyway, first you will get answers from the biopsies and then you will figure the rest out. Wishing you some clear answers and a plan to relieve the pain soon. Keep us posted.
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