Seeking Updates on Lynparza - SHARE Ovarian Can...

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Seeking Updates on Lynparza

9667 profile image
9667
7 Replies

I am interested in acquiring any of the latest news/updates on Lynparza and OC.

Thanks

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9667 profile image
9667
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7 Replies
GwenHP profile image
GwenHP

One way you can do that is to set up google alerts. That will deliver to your in box on a daily basis news and links to articles

akossgolden profile image
akossgolden

Hi 9667

I recently started Lynparza. It's been just over 30 days. I have not had any reactions or serious side effects. I was afraid to start it after reading all the information I got from my Oncologist. So many side effects.

I read several stories from women on this site. It made me realize the risk was worth it. If my body can handle Lynparza it can add years to my life.

I feel blessed that my insurance company covers the cost, its very expensive.

So far so good. I saw my Onc yesterday and she is pleased. my bloodwork looks very good.

I hope this helps. ask questions if you wish. Any time. we are here. stay strong and keep looking forward.

Annette

lovemy3dogs profile image
lovemy3dogs

I have been on Lynparza for 7 months. My blood work has been good so far. I did have to have the dosage reduced from 300 mg twice a day to 200 mg twice a day. This was done in the first month and I have been fine since then. I little joint pain and fatigue but nothing that keeps me from my daily activities. I'm BRCA 1 + and I'm hoping it works as well as they say.

Beachperson profile image
Beachperson

I was on it for ten months at 200 dosage. Plus Avastin and felt well. It stopped working for me so I'm now on Avastin and Gemzar

Apwulady profile image
Apwulady in reply toBeachperson

I have currently started taking Lynparza myself last month. I was wondering how did the medicine stop working for you? Did your numbers rise? Were the side effects too much? How's the Avastin and Gemzar working out? Any side effects

9667 profile image
9667

I have been on Lynparza for over a year. I am doing well on it. I believe that it is a miracle drug. My CA 125 is holding steady. I do experience fatigue BUT I don't let it stop me from living a full life. If I may help in any way, please email me back.

Debi

SurvivorSusan profile image
SurvivorSusan

Lynparza stopped working for me after 7 months. I then went to 6 rounds of chemo with carboplatin, taxol and avastin. Now I'm on Zejula. So far so good after 3 months.

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