osurdu: I just started taking Osurdu. I... - SHARE Metastatic ...

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sancarlos profile image
8 Replies

I just started taking Osurdu. I am very dizzy, wondering if anyone else has or had this problem!

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sancarlos profile image
sancarlos
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8 Replies
Pbsoup profile image
Pbsoup

Hi. I am not on Orserdu any more, but was on it about a year ago. And yes it did make me a bit dizzy. Not debilitating, but noticeable...

Blondslovelife profile image
Blondslovelife

I have been on it since October of last year and on a few occasions I also felt dizzy. Other than that I have been fine. Started on medium dose and then increased to highest in april. Last CT in July tumors were stable. Next CT in October.

Salmon4 profile image
Salmon4

I’ve been taking Orserdu for about a month and have had no dizziness. But have had trouble with indigestion. First CT next month..hoping for good results

Hope your dizziness improves

Sister3nkc profile image
Sister3nkc

Hi, I just started taking Orserdu 3 weeks ago. It is not going too well. The nausea hits me within 10 minutes after taking the pill. I am taking it with my evening meal, never on an empty stomach. 3 times I've had to take sublingual zofran because the nausea was so bad. It is to the point I keep the zofran by my side after I take the Orserdu because I know the nausea is coming.

I do not know about the dizziness yet. I am taking oxycode for pain from a tumor on my right hip. The oxycodone causes dizziness also. I am currently getting radiation therapy to the hip and hopefully the pain will subside after the radiation.

Good luck to you. Please talk to your doctor about the dizziness.

Namaste

sancarlos profile image
sancarlos in reply to Sister3nkc

Thank you so much for sharing your story. My husband said “ that is you” when I read your reply. I never thought about the ocycode causing my dizziness. I see someone tomorrow, hopefully they can help me. I am also supposed to receive radiation for my right hip pain.

Be well.

Lolabazzle profile image
Lolabazzle

I am also on Orsedu and my main issue is nausea and vomiting. No dizziness but I guess it afffects people differently. I am actually wanting to go back on the darn fulvestrant shots because of the vomiting issue. Anyone else stop orsedu already? Hope you can clear up your dizziness issue soon.

Sister3nkc profile image
Sister3nkc in reply to Lolabazzle

I am not tolerating it well either. The nausea is terrible. My biggest concern is will this gradually get worse? Im thinking about asking my oncologist for a dose reduction.Good luck to you.

sancarlos profile image
sancarlos in reply to Sister3nkc

I went to my oncologist today, she wants me to try a medication that reduces nausea and dizziness. My pharmacy has to get it , so I’ll let you know if it works. I also want to try a lower dose.

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