Striving to walk again, more progression, radiation and Trodelvy advice and prayers most welcome.

[Saltandlight]

Hello all! It has been a long time since I posted as my path has been plodding - learning to walk again, discovering even more bone progression, being pulled off Xeloda as it wasn’t working, more radiation and now Trodelvy.

The extensive bone mets are making physical therapy a challenge for sure and my forward progression seems so slow. I’m two Trodelvy treatments in and halfway through 10 radiation treatments. I surely would appreciate any advice from those of you on Trodelvy or any firsthand experience.

You all have been such a ray of hope during a dark period where I have questioned my treatment plan, my oncology team and sadly even my unwavering faith. I have felt guilty reading your posts and not responding or telling you I’m praying for you. Today, I’m taking that next step on this PATH OF LIFE to do whatever it takes to be the salt and light and glorify God with my long life by helping those I can by whatever gift I can use.

Thank you all for being so strong and supportive. I feel so blessed to be a part of this community. Know you are loved!

[Tanyateresa]

Morning SaltandlightI've been on Trodelvy 4 months now .

My tumour markers have been a bit up and down but all my bone pains have disappeared which is fab. I haven't had many side effects, - just a bit of nausea at the beginning and constipation. Also a bit of weight loss which I combat with daily swimming .

Have to be careful with the white blood cell count as that's apparently one of the biggest side effects. But in general good news. Hope it goes well for you,. Yes we are blessed to be part of this community . It is very helpful and inspring.

[Saltandlight in reply to Tanyateresa]

Thank you for your reply! I’m experiencing all the side effects they told me I could expect and lost all my hair in one fell swoop last night. I’m glad to know they’re worth the good news! I wish you the best!

[Best521]

😄 I love the picture you posted. I am on Trodelvy now and have completed 34 infusions or 17 cycles. The start was rough with severe side effects. I had complete loss of hair, all hair everywhere, in addition to nausea, diarrhea, hives, rashes, swollen tongue, low white blood cell counts, low red blood cell counts, mouth sores etc. My care team responded immediately, lowered the dose and the side effects abated quickly. I am very happy with Trodelvy. My tumors decreased by 25% and I now carry a low tumor burden. The premeds given on infusion days take care of nauseu, acid reflux and allergic reactions. The side effects are manageable and I use Immodium on needed days. I no longer experience nausea. I have no neuropathy. I drink plenty of water, organic juice, teas, mineral water and stick with a Whole Foods low in saturated fat diet as well as exercise daily. I see family and friends frequently and am very thankful for this life extending drug. Trodelvy is working very well for me. My lesson learned is to not tough out any adverse side effects. There is no need to suffer. Notify your care team immediately should you experience severe side effects so that they may look into lowering the dose. Wishing you the best and success with this drug.