Long Term Survival Liver Mets

[Frenchgirl69]

Does anyone have a long term survival with liver mets from breast cancer?

[Kerryd22]

Not me as I only have bone Mets but I know of a woman on another site who has had multiple liver Mets. She’s had MBC for 21.8 years with liver Mets. For much of that time she’s been NED.

[Garden-Lady]

I have had E+ breast cancer since 2012. Liver mets since 2022. They have got worse, but I'm still here.

[Andersl]

I was diagnosed with stage 4 ER/PR/HER2+ 4.5 years ago. Liver mets have been on/off a few times. Managed with chemo.I had recurrence in liver this year and switched chemo to Enhertu. PET scan due this week but pain in liver has subsided so I think the treatment is working.

I'm sure lots of people will have survived many years with liver mets which have been treated.

Best wishes xx

[cpidacks]

I was diagnosed with MBC in the liver in March of 2019. I am on Faslodex only. MRI's have been stable and labs and tumor markers normal. Hoping for many more years.

[Sorbet7]

I was diagnosed August 2020 with Mets to bones and a few in liver…I am now 3 years out with liver Mets reduced in size and stable. Still on first line of meds which is Ibrance and Letrozole. Hoping for many, many more years!!

[Sorbet7]

Forgot to mention, I am ER+, P+, Her2- and tumor markers are currently normal. This is a great site for info and has helped me tremendously in the last 3 years.

[Hazelgreen]

I have had extensive (spleen, limbic system, bones, lungs, skin) metastatic breast cancer diagnosed since early 2019. My liver mets were first diagnosed in April, 2021. They continued to grow for the next year but my bloodwork indicated the liver was functioning normally. Since the spring of 2022, my liver mets have stopped growing or shrunk. I started taking ribociclib that January. I'm still taking it 20 months later and my liver functioning is normal. I hope to continue surviving for the long term but, at age 78, long term isn't necessarily that long 😉.

[PJBinMI in reply to Hazelgreen]

Love your sense of humor! I'm 77 and have thoughts like that, too! My grandmother lived to 102 (after having endometrial cancer in her 70s during the 1950s) and her last several years were sure not what I'd want! Never diagnosed with Alzheimer's, but very poor memory, didn't recognize family, needed more day to day care than any of us could provide. So, dying before 90 is just with me> LOL

[Hazelgreen in reply to PJBinMI]

So, you are thinking another decade or so would be good. It would be so handy to know! I hate to leave my house but want to leave its worth to Lifewater, a charity that seems to be doing much good in Africa. I'd like to know for sure that this will be done if I suddenly die but really have no one to entrust my estate to .....

[PJBinMI in reply to Hazelgreen]

Ask the nurses at the cancer center where you're treated about any local charities or non-profits that offer end of life planning. Hospice programs probably have connections with people who can help with wills and estate planning. I wish my husband agreed with me that it's probably time to sell our house and find something smaller and easier to take care of! I think he'll stay here forever if I die first, LOL! If he dies before me, I really don't know if I could live here on my own! I wouldn't be able to keep up with the house and yard work! sigh.

[Iwasborntodothis]

I've had liver mets for 2 years. My doc says that so long as liver function blood work ALT? is normal - the mets are not as worrisome. When I was recently on a chemo that did not work, my blood work was outside normal and my liver was painful. Now that I am on Trodelvy my numbers are normal. I'm just an architect so I don't get all of the medical stuff (I didnt even really know where my liver was before all of this )but my doc says that there is a large portion of the liver that can have mets and not harm liver function. I'm choosing to ignore the dire stats about liver mets you can find online.

[Hazelgreen in reply to Iwasborntodothis]

You are fortunate in having a doctor who doesn't rush to medicate. My experience is that normal liver functioning means medication is unnecessary.

[Iwasborntodothis in reply to Hazelgreen]

Dr Wendt at St Joes Phx is the BEST

[Iwasborntodothis in reply to Hazelgreen]

Just back from start of cycle six Trodelvy - liver bloodwork all normal and my CA15 down another 30%. I like coming away with hope

[Hazelgreen in reply to Iwasborntodothis]

Congratulations! I think a positive mental attitude helps our functioning in every respect!

[Hidden in reply to Iwasborntodothis]

Your reply is very encouraging. I have multiple liver mets but blood tests show liver function is normal. I got very despondent looking at the stats for liver mets online. Best wishes.

[Frenchgirl69 in reply to Hidden]

Thank you for all your responses. I, too, get despondent when I see the stats for liver mets. My liver function tests are normal; therefore, I hope for the best, but sometimes, dark thoughts creep in. My oncologist said it is possible to live for years with liver mets.

[Hidden in reply to Frenchgirl69]

Pleased your liver function tests are normal, and mets have shrunk. Like you I was diagnosed with liver mets last year, although I also have mets to spine and lungs. I'm also on Letrozole and Ibrance, but live in the UK. I hope you continue to do well, all the best. Sue.

[SaraJukebox]

I was diagnosed de novo breast cancer with liver mets only in Dec. 2014. My first line of treatment was chemo (Taxol), Herceptin, Perjeta and Faslodex. Taxol was discontinued after 5 months but I continued on the other 3 meds for 4 1/2 years. I was able to then do just the Faslodex for the next 2 1/2 years before I had some progression in the liver. We did new genetic testing and I started on Ibrance and Letrozole in June 2021. This combination has been working well as my scans are stable and the mets in the liver have practically disappeared. Onc says I'm going to be around for a long time--and I truly believe in Gods healing power!! He's gotten me this far, He can do the same for you!!

[Pups2Cute]

Hi there, there is a lot of hope for people with this diagnosis. My Mom is 77 and was first diagnosed with bone only MBC in October 2020. She recently (in May) had a scan and it revealed a 6 cm liver mass. Her labs are perfect and no liver function issues whatsoever. She has now switched from Ibrance and letrozole to Faslodex only along with a trial med (double blind study here in Canada). She went for her two month scan and was told her bones are stable or no change which is great as the Mets have been very hard to detect in scans. She will see her Onc tomorrow to find out about the liver and will get her monthly Faslodex injection (which she has tolerated very well with no negative side effects. Praying this works well for the liver. Will give an update. FYI - she has HR + and Her 2 neg lobular. Best wishes to you.

[Pups2Cute]

btw - her liver biopsy confirmed it was from the breast. Hoping the new treatment works well for a long time.

[1711JPD in reply to Pups2Cute]

Do you know if having a liver ablation would be an option for her? I have had 3 liver lesions removed at different times. Best wishes to all.

[Pups2Cute in reply to 1711JPD]

Yeah we were wondering the same thing but her Onc doesn’t believe in that approach. She says it’s invasive and it can grow back. My Mom says she wants it out. Her Onc said if my Mom really insisted on having it removed she would find a surgeon for her though. I heard ablation therapy is less invasive than traditional. I live in Boston and should ask for a second opinion at Dana Farber center. I’m glad the ablation worked well for you. You’d think it would be a good option for solitary met.

[Best521 in reply to Pups2Cute]

A radiological oncology team from MD Anderson in Texas has a great YouTube video on ablation. I have saved it in case I need to go pay them a visit. The Inteventional Radiologists feel ablation helps with overall survival. The part discussing ablation comes in at around 29 minutes. Promising treatments with great results

youtube.com/watch?v=rO6t-d3...(Not working as expected?)

[Pups2Cute in reply to Best521]

This is interesting. Thanks for sharing! My Mom’s app went well today. Her bones are stable and liver met is stable and may have even shrunk. Labs normal as well. Happy day!

[Pups2Cute in reply to 1711JPD]

I’m going to look into it. It’s encouraging hearing from people who have had ablation. Best wishes,

April

[1711JPD]

Mine were removed by an Interventionist Radiologist. It cant hurt to talk to one to see if it is a possibility. Not all mets can be zapped. Depends in location and other factors

It is very targeted. You are knocked out for it. I had a bandaid to cover where the probe (not sure that’s the proper term) went in. Mine wanted a new CT abdomen in addition to the other scans.

Getting another opinion is a good idea, to me. Best wishes!

Joyce

[1711JPD]

👍👍👍