Spread to colon

[Ticket123]

Hello, I am freaking out. I just read my scans and it appears that my MBC has spread to my colon. I am on fulvestron and Ibrance. ( 7 months). My original cancer was lobular. Just wondering if anyone has had it spread to bowels and what they did. I have a DR appointment today so I guess I will find out. Thanks. Carla

[Hidden]

Hi Carla -

Gosh, I'm so sorry to hear about your scan results!

I don't have any similar experience or insight to share, just wanted to say that I'm hoping your doc has some treatment options to effectively deal with the colon mets!

Best wishes,

Lynn

[Ticket123 in reply to Hidden]

Thanks for responding! False alarm. I read the CT report incorrectly. I have decided not to read them before dr appointments. This whole scan thing is rough. Haven’t figured out how to get through them with any kind of peace. Hopefully it will get a bit easier. 🌸🌸

[BluHydrangea in reply to Ticket123]

Sorry about all this worry. It’s hard not to read the scan report— but I too have been upset by something in the report that isn’t really anything. I wish you the best going forward!

[Nocillo]

So sorry to hear this. I have ductal and lobular and last year the lobular spread to my stomach lining. I was caught completely off guard. My new oncologist said that lobular tends to favor the digestive tract. I’ve been dreading any progression from my stomach. Please share what you learned at your appointment and what treatment they recommend. Was this discovered on a regular CT scan or colonoscopy?

[Ticket123 in reply to Nocillo]

Hi there! I am technically challenged so if I have already responded I apologize for the repeat! ( I thought I had but It’s not showing up!). Anyway thank you for responding. I am super fearful of the cancer spreading also. Lobular seems to be tricky sometimes. So I went to doc yesterday and found out that I had read my ct report incorrectly. ( I have decided not to read them without a dr present from here on in). Turns out the cancer in my bowels didn’t spread just that this particular radiologist went into serious detail about the cancer that has always been there. I guess different radiologist comment about different things in different ways. In no other scan has it been described in such detail. Rough day but good outcome that I am grateful for. I am on ibrance and fulvestrant and have been for 6 months. Besides the scans and tumor markers my doc puts a huge importance on how I feel. Seems to think that’s a good indicator on what’s happening with the cancer. Who knows. She also says that there are other options when these meds stop working. I have metastasis in my liver and a few spots on my bones. What treatment are u on? Do you have many symptoms from your stomach? Thanks again for responding. Carla

[Nocillo]

I’m currently on Ibrance and Tamoxifen and have been for a year. As long as the medicine works, I don’t really have any stomach issues. However, the slightest bit of indigestion can make me panic🙁Good luck!

[Contrarielle]

In 9 years, I have never learned to relax at scan time. It's worse here because at our hospital it takes 2 -3 weeks for the scan to get reported so its always at the back of your mind.

[kearnan in reply to Contrarielle]

Wow. Are you not in the US? I have a CT scan at the cancer center, within two days I have the report on my patient portal and usually my onco schedules a scan and then an appt. with her two days later to discuss. The most important thing I learned from this board was that all women tolerate different meds in different ways so that I can't go by what one post says. I do not come on here too often (only when on a new drug and want to see what others have been on it and what side effects they may have experienced.)

The time I spend going to the cancer center, waiting, and then coming home is enough. I do not need to be thinking about it 24/7 otherwise I am losing the time I have now and now being in the present.

[Contrarielle in reply to kearnan]

No, I am in Aotearoa New Zealand. There are many great things about our national health system but it is struggling for funds and staff. I'd still say I've had very good care 😊