I recently was diagnosed with the endometrial cancer and underwent a surgery. The endometrial cancer was stage 1b high grade ocerous tumor. But it was not a concern and further treatment was not needed. The concern was that the pathology report showed breast cancer spread to 6 lymph nodes out of 13 removed, ovary that was removed, fallopian tape that was removed and pelvic area in many places. My breast oncologist is saying that it’s very rare
Not any pet ct showed this spread. Please help me to deal with it. Has anyone had it and what was the treatment. I am very very anxious and upset. I am on Xeloda now
Please help
Best,
Marina
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Cureforever
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I was diagnosed breast cancer in Jan2017. Dec 2018 I had a Elective complete hysterectomy at the strong encouragement of my gynecologist. All the pre tests for that procedure looked good. But when the stuff was sent out after surgery they found a spec of breast cancer in my right ovary. So I was now mbc. I am er+ pr+ her2-. My onco dx test came back borderline. So two separate oncologists felt the benefits of chemo would not be worth the side affects. So I was put on arimedex to start. Then when I was diagnosed mbc they switched me to letrozole. That was Jan 2019 so far so good. I hope it continues as I have very few side affects and the ones I have I can deal with. My original bc was left breast had mastectomy and axillary lymph node removal. From being on this site I have come to the conclusion that breast cancer can spread any where and everywhere. We must be in tune with our bodies and report everything to our physician.
☝️here too. My 🙏✝️ with you Marina. Deep breaths & just keep plugging away. Onc just found lump in abdomen "in the splenic area". My Dr. put me on Xgyva in Jan. I go in tomorrow for follow up abdominal CT w & w/out contrast so I'm up at midnight right now due to fasting. I've had so many of these they don't scare me anymore, but I HATE FASTING 😖! As for the results, it's in God's hands. I'll cross that bridge when I come to it. Worrying won't make it go away, that's the dr.'s job & I know mine's doing her best.
Hello- I’m about to celebrate 2 years with mbc in my abdomen. I’m currently on Xeloda which has worked well after Ibrance failed. I’m also recovering from COVID but making progress. Sending you a hug and lots of positive thoughts! Suzanne
Hi Suzanne. Thank you very much for sharing and nice words. What is your dose? I am on 1500 Are you taking Xeloda only or something else as well ? For how long have you been on Xeloda? I wish you a speedy recovery monoclonal antibodies help a lot
I've been on Xeloda only since February 2022. I recently had my dose lowered to 1000 twice a day, every other week. So far I am tolerating it much better and have more energy. I've also been getting over a bit of hand/foot but feel it's a small price to pay to see my marker numbers drop so much. So far so good!
Marina, I too have MBC in four areas of my abdomen, which was diagnosed in November 2021. My initial invasive lobular carcinoma was diagnosed in 1995 for which I had a mastectomy, chemotherapy, and five years of tamoxifen. Then in 2005, I had a local recurrence for which I had radiation followed by five years of letrazole. Last November, I was put on Ibrance (125 mg) and letrazole (2.5 mg). So far, I have been able to tolerate this combination and am stable. My next set of scans is next week, and I am crossing my fingers that there has been no progression. This group of wonderful MBC contributors has given me encouragement and hope. My plan is to live my life to the fullest each day that I am able. Just know that you are not alone, and we are all here to support you. Cheryl
Hi Cheryl,Thank you so much for sharing. I have it in my bones as well. I once had it in liver but then it improved. I also have a scan soon and I have cold feet. I hope for new curative drugs. I am on Xeloda now.
Let me know how your scan goes. It is so nerve racking! Hang in there and think positively (easier said than done!). I try not to think of the future and try to live in the moment (again, easier said than done). It is a roller coaster ride, but as you said, they are developing drugs every day, and MBC sufferers are living longer than before, so there is hope. Cheryl
Thank you so much for your encouragement and support. Yes, I hope for new curative drugs. I follow three in preclinical development. ErSO, erx41 and Il12. Also done til and oncolytic virus from imugene. Best
HI - Was your original breast cancer Lobular cancer? What about biopsies?
Maybe rare to go to Ovaries but not rare to be found in abdomine generally.
Prior to recent years, Lobular BC was treated like "regular" solid tumor cancers if ER/PR+ and Her2 negative. However in past five years its confirmed that its very different. Lobular is not a solid turmor, its a "web like, fiberous" tumor and does not show up on regular Pet-CT scans. Secondly, metastis usually goes to the abdominal area first. Seems to be not discussed unless one is a cancer researcher or reads research reports.
I am four years out from original diagnosis of Lobular early stage, ER/PR+/Her2neg. I was originally on Arimedex but found out later it should be letrozole for lobular cancer. This year found kidneys were being impacted by something that could not be seen by PET-scan, but was finally diagnosed as MBC. In my colon and all over my abdomine cavity. Biospies reveal I am now Triple negative. I am now on Xeloda fifth cycle. Seems to be working with minor side effects. Lets see how long it will work before reach resistance.
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