Has anyone tried mistletoe injections?

[Jac-genova]

Considering having my mom try mistletoe injections, wanted to ask if anyone here tried them

[blms]

I was interested but am highly allergic to ragweed and can't take. It has some good research.

[Lookin-up]

Yes, I use mistletoe injections.

[AnnieAppleseed in reply to Lookin-up]

Me too, for the last 4-5 months.

[Garden-Lady]

Yes, I am talking mistletoe injections. I find they are helpful and I know a bit anbot the background.A friend's daughter had leukemia as a child in the early 1980's. She had a bone marrow transplant, and had mistletoe therapy for a long time. She is still alive and thriving 40 years later.

I'm giving it a chance, along with eating a plant-based diet, taking supplements and other complementary treatments.

[Justme153 in reply to Garden-Lady]

Did you run it by you doctors first? To be sure there wouldn't be adverse reaction with your other meds.

[AnnieAppleseed in reply to Justme153]

Mistletoe is widely used in Germany along with conventional treatments. Also many other countries.

[Garden-Lady in reply to Justme153]

Yes. Also, I always check the Memorial Sloan Kettering website in NY as it is recognised by most doctors as authoritative on complementary therapies.

[AnnieAppleseed in reply to Garden-Lady]

I too am using it.

[Tinkerbell03 in reply to Garden-Lady]

Hello Garden Lady,

I'm stage 4 msb to the liver. Starting Eribulin on Saturday. Can you tell me a bit more about mistletoe injections? Where can I get them? My integrative med Dr recommended a mushroom blend. I will ask about mistletoe. But before they say no, wanted to know your take on it.

Thank you

[Garden-Lady in reply to Tinkerbell03]

Yes, I am consulting Dr Claudia Kempfen at St Luke's Therapy Centre in Stroud. She also gives consultations in Stourbridge at the natural health centre there.

[AnnieAppleseed in reply to Tinkerbell03]

Mushrooms are a very important substance in breast cancer. Been used for many years. I got my mistletoe prescription from Dr. Zubin Marolia in Mumbai. He does a phone consult (he's a homeopath) so it is substantial information, lots of questions. Then the company sends product from Wisconsin.

[Jac-genova in reply to AnnieAppleseed]

thank you! Does he also prescribe herbs?

[Tinkerbell03 in reply to AnnieAppleseed]

Thank you AnnieAppleseed. I'm going to ask my Integrative Dr now, if not I will reach out to Dr Marolia. I found him immediately, Thank you again!!!

Wishing you all complete Healing !

[AnnieAppleseed]

I was diagnosed in Jan 1993. At that time I met a lovely woman at SHARE who told me she had been diagnosed about 6 years before. She had a mastectomy and used subcutaneous mistletoe shots. I am currently doing this protocol. My doctor is out of Mumbai and is a Homeopathic physician. Mistletoe is in wide use in Germany (as an adjunct), Switzerland, some parts of France and, of course, India.

[love2golfwell in reply to AnnieAppleseed]

How often do you get the injections? Also, are you on any other medications like Ibrance, etc.?

[AnnieAppleseed in reply to love2golfwell]

About two years ago I was diagnosed with follicular lymphoma, this came 26 years AFTER breast cancer diagnosis (Jan 1993). I am receiving a monoclonal antibody (no chemo) Gazyva also using Traditional Chinese herbal prescription designed for me. I added the mistletoe, taken as subcutaneous (in skin) every other day. Once a week I have acupuncture and he gives me that day's shot.

[love2golfwell in reply to AnnieAppleseed]

Ok, thank you! I am on Ibrance and Letrozole. My oncologist does not even want me taking supplements, so I'm sure she would not agree to this. I am happy it works for you.

[Garden-Lady in reply to love2golfwell]

I am taking Ibrance (palbociclib) 100mg and Letrozole. Also cranial-sacral treatment which seems to work physically to improve pain, and more deeply to release trauma and years of stress, which I believe are part of why I got cancer.

[love2golfwell in reply to Garden-Lady]

What is cranial-sacral treatment? Have not heard of that before. It sounds interesting. I also believe that stress, trauma and unresolved guilt caused my cancer.

[Garden-Lady in reply to love2golfwell]

Cranial - sacral therapy is also known as cranial osteopathy. It is a very gentle manipulation of the bones, particularly of the head and spine, which enables better circulation of the cerebro - spinal fluid throughout the body. This has a positive effect on unblocking trapped nerves and releasing stress. At a deeper level it can help rebalance energy flowing through the body, as in Chinese medicine concepts of meridians.I suggest that you read up on it online.

Let me say that I have used this therapy for 40 years with excellent results for different issues. A therapist accurately diagnosed the complex brain malformation of somebody I know well, and this diagnosis was afterwards confirmed by CT scan a few weeks later.

[love2golfwell in reply to Garden-Lady]

It sounds like an awesome treatment. I will definitely read up on it, especially since you have used it successfully for 40 years. May I ask how long you have been on Ibrance and Letrozole and the mistletoe injections? Thanks

[Verbena1]

I read about mistletoe for the first time 2 months ago and asked if we could look into them for an add on to my treatment. They told me no, (they like to be buzzkills over at my onc) haha. The NP there said they used it where she used to work but she felt it was not needed or as effective and that she knew my doc would say no. He usually gets on me and thinks I look at too many things online. Still I’ve seen incredible testimonials of it for people, so if they didn’t give me such a hard time about it, I’d do it.

[AnnieAppleseed in reply to Verbena1]

Ask what the evidence is for saying NO. Usually there isn't any. Mistletoe is widely used in Germany, Switzerland, parts of France, UK and India. (elsewhere too I am sure).

[Verbena1 in reply to AnnieAppleseed]

Exactly, she kind of intimated that it was used there at her last place but didn’t have the firepower that all of these drugs have that I’m now on. Also that many of the patients there died as they weren’t getting these same meds. I realized it was a losing battle so I just dropped it~

[Garden-Lady in reply to Verbena1]

Make up your own mind, they are not gods. There is a great deal of evidence that it helps, even if it doesn't always 'cure' on its own.

[Verbena1 in reply to Garden-Lady]

I agree with you that they aren’t gods, and knowing that I’m a huge advocate of holistic treatments whenever possible, my doctors are all used to hearing me push back on everything that I disagree with re: my own, however I think it’s dangerous advice to advocate that anyone do what you’re suggesting.

These same doctors absolutely saved my life when I was dying last year, and I’d add that many of us don’t have the luxury of trial and error that some others might have to just “add in whatever components we’d like”.

I’ve made some major compromises since last year and I’ve agreed to check in with them first before I decide to move ahead with anything else I might want to do. There are sometimes contraindications to specific treatment protocols so you need to be careful.

As one of my doctors said, “You went off track and we were able to bring you back once, but we really need to work as a team - I don’t know if we’d be able to bring you back a second time.”

[Garden-Lady in reply to Verbena1]

I completely agree with you, which is why I have discussed mistletoe and also other treatments with my GP, oncologist and surgeon.The surgeon, who is from the Netherlands, was aware of the treatment and have me her support, so long as I also took the allopathic treatment, which I have.

I've agreed with my current oncologist to check the Memorial Sloan Kettering website, which we agreed was the place to go to assess the question.

I do not suggest in any way refusing allopathic treatment. I am suggesting doing both, and also becoming the decision-maker oneself, and not just passive recipient.

In other areas of my life, I have been a carer for 40 years for two people who do not have mental capacity. I have lost count of the times I was proven right, and the doctors wrong about developing issues, some of them life-threatening. I have had to learn to trust my judgement, observation and research because blind obedience led to big issues that could have been avoided, or at least been much less destructive, if the doctors had listened to me.

[Verbena1 in reply to Garden-Lady]

Makes sense, and I totally get where you’re coming from.

And I didn’t think you were saying to refuse allopathic treatments: I think from my current vantage point, I just decided to drop the topic with them (for now, anyway!) and choose my battles until I continue to see more of the same improvements…I’d still really like to add other adjuncts like this one, but to get them to incorporate it into my current treatment would be like pulling teeth; they don’t want me straying into any other territory right now and I’m too scared to deviate after what happened last year…

I’m hoping at some point to get another opinion and my ultimate goal would be to get off meds altogether and transfer into something milder on the system, but I know it’s going to be a little while for that.

[ANNIE6449]

I used it during my chemo 3 years ago. Gave myself an injection 3x weekly. Helped with side effects of chemo. Have a great gp who specializes in integrative care with cancer patients and says it is standard of care in Europe. In my experience most docs say no to anything they don’t understand or have experience with.

[Dflur]

Never heard of it! What is it? What will it help with?