Curious...are any of you using subcutaneous mistletoe injections?
Mistletoe: Curious...are any of you... - SHARE Metastatic ...
Mistletoe
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Aelgersma
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What exactly is this? And who gives these injections? What are the injections supposed to do for you? Kats3
I do the injections myself. Very easy.
Never heard of it
Yes....more like info please. Not familiar with this one at all...😀
More info please...😀
Yes, I"ve been doing subcutaneous mistletoe injections from Helixor Germany for over 6 months. I have bone mets and tried Ibrance & letrozole, but had difficulties with side effects and blood counts so stopped both of those 5 months ago and have gone completely with the recommendations of my naturopathic oncologist. I take a lot of supplements (medicinal mushrooms, DIM, Vit D, etc) and do the subcutaneous injections 3 times a week at home with her guidance. It's an easy process. There is a clinical trial on IV mistletoe just starting at Johns Hopkins because it's been used since the 1920's as a main treatment for cancer in Europe. The trial was funded by donations because it's not something pharma companies can make money on since it's a natural product, but there's a lot of backing for it. I order directly from Helixor in Germany and it arrives within about 1.5 weeks. It's not covered by insurance here yet, but I deduct it with my HSA. So far things are working for me. My CA 27-29 tumor markers started at 274, and have dropped continually. I am now at 31 which is in the 'normal' range of 0 -38 and have been around there for 4 months. Heidi Lucas is my doc in Santa Barbara and San Luis Obispo and she does phone work. She's fabulous. Not sure if you have someone in your area, but I plan to continue mistletoe and my protocol because it's working.
This sounds very interesting. I'm taking mushrooms capsules myself. What is DIM? Did your regular Oncologist agree that you do the mistletoe or does he/ know you're doing it? My Onc went along with the mushroom stuff. I'm also taking Turmeric capsules, Ginger capsules, but no extra Vitamin D. How much of that do you take?
Glad to know your tumor markers are going down. Are you getting any other type of regular "western" cancer treatments such as Xgeva or Zometa for your bones? Thanks for any input!
Kats3
I am still on Xgeva injections every 3 months, although I heard there's a new study that shows it may be just as effective every 3 or even 6 months as compared to every month. That is the only western med. I'm taking 5000 units of Vitamin D daily to keep my levels up to a target of 60. You need to do the blood test to see where you're starting at, but Vit D levels seem very important for many health issues. I'm also taking turmeric and many other things. DIM is an extract of a compound found in cruciferous vegetables and helps keep estrogen levels down. I'm sure there's good info online about it. My regular oncologist works with my naturopath and is aware of everything I'm doing. She wouldn't have suggested going off the western meds, but she supports my decisions and has even called my naturopath when she's had questions. I'm very fortunate. She is also a supporter of mistletoe injections. My naturopath has me switch medicinal mushrooms every two months so my body stays reactive to them. I've been through turkey tail, shitake, reishi, maitake and now chaga,, which i hadn't even heard of.
Anne50,
Do you take the Turmeric in capsule form or the loose Turmeric that you sprinkle on your food? I take the capsule form but am wondering about this as I'm being told that it should be taken with a little olive oil and black pepper. Thanks for your input. Kats3
I do both encapsulated turmeric that has black pepper (piperene) as well as I make a paste where I cook the powdered turmeric for 15 minutes with water, then add black pepper, and some spices for taste (cinnamon, nutmeg, cardomon) and a bit of coconut oil. I'm sure you could find a recipe online. I mix that with hot soy milk for a beverage. I do also add powdered turmeric to my food with black pepper. It's good for everyone!
You are very lucky to have an oncologist who is open to that. I've gone to many oncologists who yell at me, glare, treat my like a child etc. They clearly have no openness to holistic. Maybe it's because they get commissions and kickbacks on chemo and drugs. I've read they can make a million a year. Conflict of interest so now I don't know if I really need a drug or of the need another stream of revenue for their next alimony payment.
I use mistletoe, slugs of supplements and oils. My oncologist doesn't tell me to do it, but he doesn't tell me not to do it either
Hi Anne50,
Wow! I think it's wonderful that your naturopath and regular Oncologist are working together! You don't see that very often. What does the mistletoe do for your body? Does it kill cancer cells or strengthen your immune system? Or both?
How extensive were your bone mets? Do you have bone or CT scans every so often? Do you ever have bone pain if you do anything physical?
I also have strictly bone mets at this time. I'll be having a couple of scans done with his week to see where I stand. Right now I'm on Xeloda and get Zometa infusions every 3 months.
Thanks for all the info. It's very much appreciated!
Kats3
Mistletoe is not a tumoricidal. It stimulates your immune system. You inject into your belly fat. B17 however is and I am researching if I can inject it directly into my tumor. Tempted to do it but looking for some validation.
Bioresearch.com also has an immune stimulus made from your urine. Based on Dr Virginia Livingston wheelers research.
Aelgersma,
Are you using mistletoe injections? If so, do you feel they're helping? What subtype of BC do you have?
Anne50 is having good results with it. I like to know your experience with it. Kats3
I use mistletoe along with a very extensive supplement regimen nd essential oils. I do believe that something in the integrative approach has helped with conventional treatment. I dont and cant know exactly what is or isnt working but believe the extra stuff isn't hurting me for sure. I did 6 treatments of harsh IV chemo and never once got sick. Now I do Fluvestrant injections along with Xgevia monthly. I take Ibrance oral chemo 21 of 28 days. I live in Iowa and work with an integrative oncology specialist in Colorado. My mistletoe had been coming from Canada but they just stopped shipping to the US. Sounds like we still bet it out of Mexico. Yes, it's all overwhelming for sure
Wow...I'm going to talk to my oncologist regarding this. I have breast cancer and bone Mets and am taking the estrogen blocker arimidex and every four weeks have an IV of zometa. Haven't tried anything else so will definitely talk with my doctor about this. She did give the ok recently to take tumeric when I asked about it but I haven't started yet. Thank you everyone for all of your information!
Yes, I'm using mistletoe and have collected quite a bit of information about it. It's used in Germany.
One way of ordering it (need to have a prescription for this site. They have a youtube video showing how to do it….looks like it comes from Germany. I think for breast cancer it would be Helixor M.
mistletoe-pharmacy.com/cont...
According to a report on the National Cancer Institute website, John Hopkins is doing trials to some extent with this.
cancer.gov/about-cancer/tre...
Also, according to the Physicians' Association for Anthroposophic Medicine (PAAM) website – here are a couple places where you can order it.
shop.urielpharmacy.com/cate...
paam.wildapricot.org/N-Phys...
A couple other websites -
helixor.com/contact/helixor...
Uriel Pharmacy | 866.642.2858 | orders@urielpharmacy.com
paam.wildapricot.org/Mistletoe
steiner.presswarehouse.com/...
Mistletoe eLearning Course for Healthcare Professionals:
I found this from a publication from Ralph Moss: Please remember this is a bit out of context as the breast cancer report is over 500 pages. He does have a section on mistletoe and I'm not sure how much to rely on it as a primary therapy versus supplemental. I'm sure it helps but would prefer to go full out and avoid the Rx's.... Has anyone done this?
A total of 1,442 breast cancer patients (710 tests and 732 controls) were involved in the study. In
fact, the mistletoe group had more advanced disease and worse prognostic factors. After a follow
up of over five years, 54.1 percent of the control patients had developed adverse drug events
from conventional therapy. But among the mistletoe-receiving patients, that number was only
16.3 percent (less than one-third). In the mistletoe group, the overall survival was also
significantly longer.
And here is another quote from Ralph Moss' report:
A 2006 randomized, double-blind clinical trial carried out in St Petersburg, Russia, found that
standardized mistletoe injections significantly improved quality of life for breast cancer patients
undergoing chemotherapy.
(Semiglazov VF, Stepula VV, Dudov A, et al. Quality of life is improved in breast cancer patients by standardised mistletoe
extract PS76A2 during chemotherapy and follow-up: a randomised, placebo-controlled, double-blind, multicentre clinical trial.
Anticancer Res. 2006;26)
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