hope

Hi everybody. All of my medications failed and so am on fulvestrant or faslodex. Does anyone have any positive results from this please? Please dont tell me negative results as I cannot take anymore bad news . Thank you all and pleased to meet you.

[Bettybuckets]

It has pretty good data on its own… so my dr started me on it when I first had MBC… she had a lot of confidence in it. It hasn’t given me any trouble taking the shots and hope that is true for you too!

[Nocillo]

I was on a combination of Faslodex and Anastrozole for 6 years and it worked wonderfully during that time. I hope it works well for you!

[debbiedo2063]

Hi Letrozole did not work for me but so far 7 months on fulvestrant with no side effects and shots not a problem, I feel great, travelling all over the UK right now. Long may it continue. Good luck with the meds.

Debra xxx

[Verbena1]

hi, back in Feb I had not so great scan results after having some great ones…started on Faslodex and a couple others in April, and my last PETscan a month or so later showed marked improvement with lesions healing up and no progression. Here’s to your next results being stellar!

[Georgiamjb]

I’ve been on Faslodex for 9 months and have had 2 stable scans and no problems with the injections! Good luck!

[cpidacks]

I have been on Faslodex since March of 2019 with stable scans. The only side effects I have had are hot flashes, itching and soreness at the injection site. Try to relax when the nurses are giving you the shots. Don't tense up. I walk after the shots and use my heated seats in the car. This seems to help. Good luck to you and all of us in our journey.

[Gingerann1]

Hi Aprilrose! I have been on Faslodex and Ibrance for 8 months as first line treatment and my June scans showed an improvement in my lung and no progression to any other area/organ. My Onc was thrilled. Don’t know what other meds you’ve been on but I hope you do as well. We’re all with you to cheer you on! There are many exciting developments in the treatment of MBC that give us all hope.

[Adele_Julia]

Hi Aprilrose ! I've been also on Ibrance and Faslodex for 8 months similar to Gingerann1. My latest PetScan in May showed marked improvement. I'm ER/PR+ Her2-. Faslodex is supposidly coming out with an oral form hopefully by the end of the year. The shots are easy to handle if the nurse injects them correctly. Lift a leg when having it administered so your hip flexors are relaxed. xoxo

[diamags]

I've been on Faslodex and Arimidex for almost 8 years now. Clearly, for me, it has worked!

[TammyCross]

Oh, envious of those who got 8 years. I found it to be a miracle drug. I could hardly walk or breathe, and was finally diagnosed with mbc, with a huge tumor in my chest, and mets in pleura, and bones. When I went for my first fulvestrant injections, the nurse said, "My medicine is going to fix you up." Day 1, day 2, day 3, day 4 -- I walked uphill then uphill some more then was able to bend down and weed my garden and jogged home. She was right! (Only trouble is that I was so up that I was moving fast and tripped over a downed stanchion and broke my knee! -- so be careful when you start feeling better.)

Alas, after 26 months, it stopped working. Then I went on an oral version, in a clinical trial, and am back on track.

So hope is justified.

[Karen2235]

Yes, I have been having monthly Fulvestrant injections and, so far, so good. The injections are a little uncomfortable but if you warm the Fulvestrant first and take a painkiller before it is fine (a couple of paracetamol). My partner warms the Fulvestrant in her armpit when we take it out of the fridge. I lean over the examination table and don’t put any weight through the leg on the side the injection goes in and then swap for the other buttock. The injection site is a bit painful for a couple of days and I find day 1 I feel a bit weak but that passes. The benefits outweigh the costs for me. One of the lesions on my liver has disappeared and the other is shrinking and the lymph nodes in my armpits are stable. I also had tumours on my sternum but they are also lessening (combined with the radiation treatment I had). I am also taking kisqali and Denosumab to counter the side effects of the osteoporosis. I have multiple health issues as I also have a spinal cord injury and scoliosis but, at this stage, I feel the MBC is under control. My oncologist calls it the Maserati treatment and that, with time, my tumours will melt away. I absolutely trust her with my life. I wish you all the best. It is tough but there is hope.

[AnnaP668]

Just be sure to stay relaxed for the short. I even lie down on my tummy as they give me both shots at once. Warm up the solution by rubbing in your hands. Use your seat heat warmer and heating pad at home and you should do fine. I got no know from the injection.