High Alkaline phosphatase: At what... - SHARE Metastatic ...

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High Alkaline phosphatase

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At what point does the oncologist take you off Capecitabine with high level of Alkaline phosphatase. Mine is 199 right now.

Anja

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20 Replies
Wintervt profile image
Wintervt

Hi Anja,

Your oncologist will probably order scans and check your tumor markers before making any decisions. My alkaline phosphate was 237 two months ago on “Cape” now it’s in the normal range.

Best,

Jade

in reply toWintervt

Thanks Jade! That's reassuring. My scan is coming up this month and I'm waiting for the tumor markers result. I had labs this morning. Thanks again for your response!

Wintervt profile image
Wintervt in reply to

You’re welcome! Hoping it’s just blip and you can continue on with Cape. xo Jade

in reply toWintervt

One question... Did your numbers go down naturally or did you take a supplement or changed your diet?

Wintervt profile image
Wintervt in reply to

My integrative oncologist prescribed milk thistle to improve my liver function.

in reply toWintervt

:) this afternoon I stocked up on milk thistle tea, dandelion root tea and nettle tea, plus fresh dandelion greens instead of my regular aragula greens.I'm so happy to hear it worked for you!

blms profile image
blms in reply to

I like dandelion roots but cannot take because I am allergic to ragweed and it makes My allergies worse. Sad I liked mixing them organic and fresh in my green drink!

ChrisVict profile image
ChrisVict in reply toWintervt

I wanted to take this but my nutritionist said that she seen some bad side effects so I stayed clear. Let me know how you do I’m still thinking that it’s worth a shot. Ha anyone taken it for a steady period of time? I read it’s good for liver mets.

in reply toChrisVict

I have the tea which naturally is not as strong as a full supplement.. I hope that'll help in bringing these liver enzyme numbers down.Anja

queeneee profile image
queeneee

Hi anja, ALP can move quickly.. my ALP has been steadily going down since diagnosis 18 months ago. I put it down to increasing my exercise.. and.... and my tumours have grown..so go figure!

in reply toqueeneee

It's so hard to know how we can help ourselves, right? And that's all I want to do.

blms profile image
blms

Hahaha my AP is over 500!!

in reply toblms

Oh wow blms! What does your onc say? Are you on Capecitabine?

blms profile image
blms in reply to

Strangely nit that concerned. Taxol and neuprogen both raise bone inflammation./ap

in reply toblms

I think you've got a great oncologist!In my case I think the Capecitabine and my genetic high cholesterol are to blame.

My tumor markers were down thankfully. So I'll increase exercise and teas, and cut out my high fat cheat foods like cheese and the occasional sweet treats :)

blms profile image
blms in reply to

I also have genetically hit cholesterol, which I really don't care about! Cholesterol gets a bad rap in general. We also need it for our brains and God knows that is challenging with these drugs!!

in reply toblms

I agree, yet I'm still not totally convinced high cholesterol does not play a role in cancer metastasis.

blms profile image
blms in reply to

very interesting! In what way? I haven't seen that in research but then I have not looked for it!!

I know you're right Sandra! I stopped worrying. Support helps so much..thank you. I'm going to pamper my liver :)

SoCalLady profile image
SoCalLady

My AP was 518, then I started Capecitabine and my AP has gone down to 184. Go figure?

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