Glorious sunny warm day here in Yorkshire, England. Im seeing my oncologist tomorrow when we'll be discussing what my next treatment will be. I used to be on Letrozole and Ibrance but since it spread to my brain lining, i was switched from Letrozole to Aromotase extemestane and no longer taking Ibrance or any other oral chemo . I was wondering if anyone was taking another oral chemo or knows of any and if so whats it like. Im only just recovering from the WBRT so dont fancy IV chemo just yet, if indeed the onc suggests it. Thanks for considering. Take care everyone.
Josie
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Mindysooty
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Wishing you all the best with your treatment Josie. It’s all trial and error with us and medication. It’s a lovely day here in Liverpool to. Take care and update us. Best wishesCheryl
Sorry Josie I have no clue, but I am with you every step of the way.Clare xx
Hi Josie,Envy you the sun. I finished my WBRT two weeks ago and am still on Taxol as I have liver, lungs, spine and brain mets. Was at the oncologist tonight and he wants me to do 24 weekly taxols. I am at week 19 now. I assumed my 'break' would be Fulvestrant but he wants to try Arimidex which is good for brain mets. He is hoping it will slow down the regrowth of tumors better than Fulvestrant. Also used to be on Xeloda and Avastin but he feels my body didn't tolerate it well. So my next port of call is the famous Red Devil. I said I was hoping for Xeloda to have hair again but he also said hair takes a long time to grow back after WBRT rather than just chemo. Hope that is more of a help than a hindrance. By the way I don't think Ibrance is chemo. Apart from losing may hair I have found Taxol very doable. This is my second round of weekly sessions. I had 19 weeks last year. Wishing you luck tomorrow. Ruth xx
Hi Ruth, ive got lung, chest wall, suspected liver, hip and spine mets but have only been on hormone treatmentand the since the WBRT. ( I read that Ibrance isnt actually chemo but its treat a bit like chemo at the hospital Im under, probs because of the neutraphils). Is taxol IV and are Fulvestrant and Arimidex hormone treatments. What on earth is the famous Red Devil, sounds scary lol. Thanks for your advice and support. Take care. X
Hi Josie, Yes Taxol is IV chemo and Fulvestrant and Arimidex (Anastrosole’) are hormone treatments. Fulvestrant is by injection. Where do you live in Yorkshire and what hospital do you go to? My husband is Welsh but grew up in Doncaster. Xx
Ah not far from me then, Im a Barnsley lass 😃. Such a small world. Im under Weston Park Cancer Hospital in Sheffield. Cheers for the extra info on meds. X
Just had a look your bio. We had our initial breast cancer (two breasts for me) the same year but mine came back one Dec 2018 (when I was being checked out for something else). Wishing you so much luck. you look great with no hair. I look dreadful xx
Thanks Sandra. Yes I got a power port a year and a half ago so I could swim in Greece ( had a Picc line before) but then along came Covid and holiday cancelled. Have booked forJune this year ( ever the optimist 😀). Take care, Ruth
Hi Sandra, nice to hear from you as ever. Nah, i dont look at latest FDA offerings. Its good to know whats out there but we're always a bit behind in my neck of the woods so theres not much point No, I'd rather pick brains on here because this is where i get the best info. That said, i no longer see that horrid onco I had. She pi'd me off because I had a disagreement with her 😁. Good! the 2 I see now are much better so Im happy. Take care Sandra xx
I’m taking Xeloda now. Metronomic dosing (1,500 mg/day). I have been taking it since October 2020 also after my WBRT. So far, it is working and I have not had many side effects. Going on my 7th month on Xeloda now. Take care!
Sandra, I don’t remember if I have thanked you for all your help before my WBRT and after. You were my ray of light and when I was so down and out and panicking, you were so calm and offered much hope. I thank you especially for sending me the video on brain Mets. It helped me prepare for my procedure. It took me a long time to recover and I was sure I wouldn’t make it. But I did. By God’s grace and your help, I’m still here. Thank you so much and I hope you are okay. ❤️Maria
I have MBC which is in bones, lymph and left lung ~ I can highly recommend Jane McLelland’s book which gives you another way of attacking cancer focusing on the metabolic pathways How to Starve Cancer smile.amazon.co.uk/dp/09519.... It took me a while to get my head round it but I’ve also done her online course (which is excellent) and since introducing it along with the COC protocol which she recommends my cancer makers are now down by 80% vs where they started
Dear Josie,I was just taken off Ibrance too. I have an MRI in two weeks on my brain because of dizzy spells. I shall keep you in my prayers and I send you positive thoughts and good vibes.
Just chiming in. Sorry to read you have more fractures. Do yours heal somewhat. My four fractures to the pelvis try to heal and don't give me pain. You are such a marvellous support to us all. So thankful you are here.
Hello Sandra! Thank you for your valuable and reliable advice. Your perspective and feedback is helpful to us all...this is indeed a journey through many different landscapes and each traveler must find the path that is safest and most tolerable. Having had breast cancer 17 years ago, I know what is out there and the trials we all face. I had sworn I’d never be bald again...but never say never, right? I’m still using the green grass powder and have added some supplements to my regimen. Hope you’re feeling better and are in a good place. Keep up the good fight!
Hi Josie: Sending hugs & healing prayers your way. 🙏❤️🙏
Hi Sandra I am echoing the others in saying how much we appreciate you. I want to save your replies so I can have them to hand when I face a progression decision. Sorry to hear you are still waiting for your 1st vaccine, that is very wrong. You will get it at some point and I am sure it will give you confidence. Hope you can get on your bike this yearClare
I am so pleased your stubbornness has allowed you to ride - I know how good it makes you feel to get out. You must have a lovely posture on the bike with that brace! Keep ridingClare
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